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Esophageal disorder - don’t know what to eat

Digestive Health | Last Active: Aug 15, 2023 | Replies (25)

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@megoreilly

I was told yesterday by the head of GI and Esophageal Motility DIsorders at Vanderbilt that there is no cure for esophageal paralysis. Spasms, which I also have, there is some treatment (botox,and a couple of pills) but that too is hard to treat. I have PPI's for GERD, and the long term effects concern me. So, this is very discouraging and I hear her sense of defeat. I am 56 and had an esophageal rupture several years ago, so the nerves were severed and cannot be 're-ignited'. Having doctors say to you 'sorry, nothing much we can do' is very hard to hear.

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Replies to "I was told yesterday by the head of GI and Esophageal Motility DIsorders at Vanderbilt that..."

@megoreilly - I totally agree. To hear that nothing can be done to treat or improve a quality of life problem is devastating.
With esophageal paralysis there is no nerve function. You have spasms too= there is some nerve function.
I have GERD too and have been on rotating PPIs for years. I know if I don’t take them, reflux with acid will be back- and then I have to worry about Barret’s esophaguses.