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Can't get a definitive diagnosis

Autoimmune Diseases | Last Active: Dec 4, 2021 | Replies (27)

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@athenalee

I completely understand and I apologize as I did not mean for my comment to sound insensitive to the issue. When I was first diagnosed with PBC I told my sister she should be checked as it can affect siblings; she ignored me. I gave up on family relations a long time ago and when I was in end stage liver disease (pretransplant) and needed support, I did fine my true friends and those who were not.

I wish you the best on your journey to find a solution and the support you deserve.

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Replies to "I completely understand and I apologize as I did not mean for my comment to sound..."

@athenalee As long as I live I shall never expect anyone to apologize to me for anything. So many things have gone bad in my life that I just figure I must have done something to deserve whatever went wrong. I list a few: 1) My doc, at my birth said I would live less than three years. 2) I was just clumsy and weak until I was teenager. 3) I have genes which are anti-psychomeds and behavior negative modifiers, so until I knew this I filled up on every psychomed the doc prescribed. Terrible! 4) As an 8th grader I could multiple 4-digit # times 4-digit in about 20 seconds, all in my head. As a high school senior I was lucky to get 2x2=? properly. 5. at 18 I could throw an 80 pound bale of hay completely over a fully loaded semi.I played, coached and officiated football until 50. At 45 I ran several half-marathons. At 50 I back-packed through central Idaho, then officiated my last football game. At 60 I could barely walk. Now at 81 I can walk only with a care or my walker. 5) I have written several books now sold in bookstores. But now I have difficulty reading, not just seeing words but understanding them. 6) My brain and nerves have been attacked by various diseases, including my cerebrum, areas 24 and 9, and my spinal cord,. No, in all this I know I have disappointed many people, including my family. I am lucky to still have a family, I guess. The one thing I will not apologize for is my attempts to make others know why I am what I am. Disease-ridden, mistake-prone, afraid to try new things, in pain all the time, and frustrated with my abilities. Anyway, that's me old karl