I have been to an ENT they recently performed an EGD and previously 2 barium swallows,5 nasal scopes, an LP, multiple xrays as my bones feel like they are shattering, numerous blood panels,MRI, CT scans showing enlarged cervical lymph nodes also have dysphagia, felinization of the esophagus mucosa, vocal cord/ larynx disfunction, livedo reticularis and Livedo Racemosa, severe photo phobia,peripheral neuropathy, poly neuropathy and tremors with anesthesia. I have been seeing providers at the U of U hospital in Salt Lake city. There are days that I literally can't walk due to the health issues I have. I constantly get told it will get better. Multiple meds have made things drastically worse I am currentlyona thickened luquid diet of honey consistency. Not sure where to turn?