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Hi I’m just wondering if anybody can tell me anything about parsonage Turner syndrome my partner (male 33 years old) was diagnosed with this 3 years ago after many months of different diagnosis he lost all feeling in his left shoulder arm hand and fingers in 2017 after months of intense pain finally in 2020 this started getting a little better although his left hand was still very much unuseable and still has numbness in parts of his arm just a few days ago it has flared back up immensely he’s in excruciating pain and his left shoulder seems to have dropped has anybody else experienced this I just started feeling positive about his recovery as this horrible thing has taken so much away from him ie job mental health and self worth but seems we have a long road ahead thank you all for any help
Replies to "Hi I’m just wondering if anybody can tell me anything about parsonage Turner syndrome my partner..."
Thank you for replying @becsbuddy any info would be a big help as we don’t know very much about it at all my partner in under a neurologist but so far the only treatment he has had is medication ie Pregabalin which helped at first when the pain first started but dont really help with the numbness/tingling
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Good morning @stacy88 Welcome to Connect. We are a group of people who try to help each other through our difficult health journeys. We are not doctors so we are unable to diagnose and prescribe, but we can share information and what works and doesn’t work. I’m going to ask a moderator to move your posting to an on-going discussion about Parsonage-Turner syndrome.
How has your partner been treated so far?