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Can't get a definitive diagnosis

Autoimmune Diseases | Last Active: Dec 4, 2021 | Replies (27)

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@oldkarl

@athenalee , The most serious problem I and probably most others with DNA issues, is that the folks we should be able to count on just wish to remain uneducated. I have tried many ways to get my so-called support group involved in this, but they simply refuse. The blockade is very strong. I will be long dead before any of them realizes what happened. Since several of my AI diseases have expected life spans of less than two years since the first noticed symptoms and signs show up, this should not take very long.

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Replies to "@athenalee , The most serious problem I and probably most others with DNA issues, is that..."

I completely understand and I apologize as I did not mean for my comment to sound insensitive to the issue. When I was first diagnosed with PBC I told my sister she should be checked as it can affect siblings; she ignored me. I gave up on family relations a long time ago and when I was in end stage liver disease (pretransplant) and needed support, I did fine my true friends and those who were not.

I wish you the best on your journey to find a solution and the support you deserve.