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Actual diagnosis: multiple autoimmune conditions
Autoimmune Diseases | Last Active: Jul 1, 2021 | Replies (6)Comment receiving replies
Hello @motte98
I would just encourage you as Becky (@becsbuddy) did to go to a multidisciplinary health care center such as a university medical school or a facility like Mayo Clinic. These health care centers are research-oriented and are the best when it comes to sorting out complex health issues.
It sounds like you have had a lot of tests and probably seen a number of doctors. I'm wondering, however, if you've ever been examined by a laryngologist? This type of ENT doctor can diagnose swallowing problems that might be connected to the vocal cords. They put a small tube with a camera through your nose and are able to look at your vocal cords. (I've had many of these tests for a swallowing problem and they really are not as uncomfortable as they sound.)
I have Parkinson's and some other disorders and found out that I have a paralyzed left vocal fold. It has been partially corrected with a simple surgical procedure.
Speech therapists are also good at helping you to correct swallowing problems. Have you been referred to a speech therapist?
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I have been to an ENT they recently performed an EGD and previously 2 barium swallows,5 nasal scopes, an LP, multiple xrays as my bones feel like they are shattering, numerous blood panels,MRI, CT scans showing enlarged cervical lymph nodes also have dysphagia, felinization of the esophagus mucosa, vocal cord/ larynx disfunction, livedo reticularis and Livedo Racemosa, severe photo phobia,peripheral neuropathy, poly neuropathy and tremors with anesthesia. I have been seeing providers at the U of U hospital in Salt Lake city. There are days that I literally can't walk due to the health issues I have. I constantly get told it will get better. Multiple meds have made things drastically worse I am currentlyona thickened luquid diet of honey consistency. Not sure where to turn?