@motte98 Welcome to Connect.We’re a group of people who share information to help each other with their health journey. We are not medical professionals so we can’t diagnose or prescribe. Autoimmune diseases are known to be difficult to diagnose and many of them have only been “discovered” since 2000. Many are considered rare because so few people have been diagnosed, because the symptoms are so nebulous. I kept getting worse and worse and no one could figure out what was going on. I wasn’t diagnosed until I was admitted to the ER unresponsive. After an MRI which showed lesions on my brain, they still didn’t know. The doctors must have spoken to doctors at the university hospital who told them to give me high dose steroids. My husband took me to the university medical center where a neurologist explained what was happening. I’m telling you this to encourage you to go to a large medical center or university hospital. They are better equipped with researchers to understand the uncommon and rare.
Can you find a medical center in your area?

https://connect.mayoclinic.org/discussion/tips-for-getting-a-proper-diagnosis-of-an-autoimmune-disease/. This discussion may be of some help