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Good luck on your journey. I also started out like you on 40 mg. For about 4 years I struggled with insomnia, and was taking melatonin. I was desperate. I had allergic reaction to sleep meds. Finally I stopped the melatonin, also began just using an over the counter sleepy time tea, and it was a huge help. Amazing. What a simple solution. I've been in recovery ever since. I adore my rheumy, but no mention was ever given of these types of things, or even a diet for inflammation. I found all of this on my own. We really have to question everything, and do our own research. I was just too sick and discouraged. Finally the light came on when I took the course on Living Well With Chronic Pain. So many good ideas. It really changed my life, and then we got adjustable beds, and I now sleep well, but after 2 major back surgeries it is difficult to lie flat and the adjustable bed has really helped.
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Thank you for your kindness. I'm glad you're sleeping well because sleep is important. I think I would kill for 6 hours again. When I'm restless, I find it best to get out of bed and go read. Usually, I get drowsy and can get a little more sleep when I go back to bed. You're right - we do have to advocate for ourselves, take the initiative to research, keep records of what's going on with our symptoms, speak up when something is amiss, and write down questions to ask the doctor. It's hard to do that when in the throes of the malaise and depression that are part of PMR and GCA - just easier to collapse on the couch and watch tv after getting a couple of things done!