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Shingrix and peripheral neuropathy
Neuropathy | Last Active: Nov 3 12:52pm | Replies (538)Comment receiving replies
It was my understanding that because it was a live virus, and he has had two stem cell transplants that it was a risky business. Then when they came out with shingrix some time later. Our current doctor said let’s wait and see. It could be because it is so new and my husband is off and on treatment for multiple myeloma, and he is somewhat fragile health wise. We haven’t revived that conversation since then. Our doctor is a proponent of vaccination. He revaccinated my husband with all the childhood vaccines after transplant.
Is Mass general holding it up for everyone or just certain groups of patients. Truth is I haven’t had it either, and since I have moderate peripheral neuropathy this thread is making me question the wisdom of getting it. I had shingles in 2019 and was told to get it after 6 months but then we were in a pandemic and then I got the COVID vaccine and they said wait at least 4 months which would be July.
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@auntieoakley Sorry, I thought you meant he had been told to not get the Shingrix vaccine. I know that the prior one did have live virus in it so was not recommended for anyone with a compromised immune system. I did have that one when I was pre-transplant. I don't know how long it lasts though, it was quite a while ago.
I only know that the transplant department is not advising it for post-transplant patients. The ruling is determined by the infectious disease department but I don't know if other areas are also affected.
After seeing what my sister-in-law has gone through, and is still going through to some extent, I want to be protected. If your doctor says with your peripheral neuropathy it's OK to get it, I would get it. My husband had a post-retirement job where many other retired people were employed and he knew a couple of people who were out for months with shingles.
JK