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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
This is a question for Linda who wrote: "but had to stop from last Nov through Feb of this year when my MAC was so bad. Once I was on my meds for a couple of months and felt I could breathe again". What were the meds you were on for those few months and when you wrote that your MAC was bad, what were your symptoms? It is good to know that one can control the MAC by taking meds for only two months, versus going back to the 18 month regimen of the Big Three meds... I just finished up with the 18 month regimen and so far so good. Pamela
Replies to "This is a question for Linda who wrote: "but had to stop from last Nov through..."
@josephene, you write you've "been on 3 big meds for 12mths with no radiology improvement..anyone else experienced this?" Yes, me. This is not unusual, rather quite common I think. Were you ill 12 months ago before going on the drugs? And how do you feel now compared to 12 months ago? That's what doctors will also consider.
@josephene, I too been on meds for 12 months and saw my Dr. 3 weeks ago did CT scan shows that I have 2 new nodules on my lower right lung. I'm disappointed and I though I'm getting better instead getting worse. I told Dr. that seems like the meds are not working. He increase the dose of Azith and he said he will order a Inhaled Amikacin. Its been 3 weeks have not seen Amikacin yet. Cila
Cila, stay on them to get you the Amikacin.
Josephine, ask your dr for more details. What is showing up on your
radiology image may be bronchiecstasis or scarring that is not likely to
change. Regular sputem tests should prove if the MAC is under control.
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I have been on 3 big meds for 12mths with no radiology improvement..anyone else experienced this?