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TS-HDS Antibody and Small Fiber Neuropathy
Neuropathy | Last Active: Nov 13, 2023 | Replies (156)Comment receiving replies
I also have balance issues and dizziness. I was diagnosed with immune mediated SFN and TS-HDS antibodies in 2018. I’ve developed dysautonomia as well. I’m seeing Dr’s at Mayo-Rochester for the first time this coming Aug. I hope to get more answers as to what is causing this. I was taking Lyrica for over a year and it seemed to help with the symptoms of pain but caused the dizziness to intensify. Good luck and please let us know how you’re doing
Replies to "I also have balance issues and dizziness. I was diagnosed with immune mediated SFN and TS-HDS..."
Hello @lbo615, Welcome to Connect. I see that you have already connected with @nastaranh2000 who has similar symptoms along with SFN and TS-HDS antibodies. Some of the medications used to treat the pain do have side effects so it's good to make a list of your questions for your upcoming Mayo appointment. You may want to take a look at this plan your visit information on the Patient Revolution website here - https://patientrevolution.org/visit-tools. It has some cards you can print out and take with you so you don't forget the questions you want to ask.
Can you let us know how your appointment goes and if you get any of your questions answered?
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Thank you very much for your response. How long you have had the dizziness and balance issue? I also stopped Gabapentine sonce it made me more imbalance. They are going to give me IvIg. Is this helpful? Have you been treated with this? Thank you.