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TS-HDS Antibody and Small Fiber Neuropathy

Neuropathy | Last Active: Nov 13, 2023 | Replies (156)

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@nastaranh2000

Hi , I have had burning and pin and needle in feet and hands for eight month and has been diagnosed with TS HDS and SFN. It is more than two month that I have got diziness and mainly feeling of imbalance and blurry vision. I have done MRI and seen several ENT doctors but they have not found the reason. I want to know if any body with TS HDS has got dizziness and balance problems? Thank you very much.

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Replies to "Hi , I have had burning and pin and needle in feet and hands for eight..."

Hello @nastaranh2000, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. I did a quick search of discussions on Connect and found that @bogibus mentioned TS-HDS and dizziness in another discussion so may be able to share their experiences with you.

Have you discussed the dizziness, balance and blurry vision symptoms with your doctor? Are you on any medications for your SFN?

I also have balance issues and dizziness. I was diagnosed with immune mediated SFN and TS-HDS antibodies in 2018. I’ve developed dysautonomia as well. I’m seeing Dr’s at Mayo-Rochester for the first time this coming Aug. I hope to get more answers as to what is causing this. I was taking Lyrica for over a year and it seemed to help with the symptoms of pain but caused the dizziness to intensify. Good luck and please let us know how you’re doing