Hello everyone!
I was diagnosed with PMR on June 1 and had already started on a prednisone series which worked great until it tapered down to 10MG and I was in misery. My primary kept me at 20 and I have tapered at his advice to 15mg but I am confused as to when, why and how to taper more. I actually am unusual in that I have little pain compared to other stories I read. Yes, one shoulder and lower left back do hurt but the pain rarely exceeds level 3. My main complaint is racking nausea and a tingling sensation in my feet and sometimes in my fingers. Since the nausea could be from either or both the PMR and the prednisone do I taper or does the amount of nausea NOT dictate the speed of the taper? What to do about the tingling? How to treat this nausea? I would also be interested in hearing about when and why patients started on methotrexate and what percentage enjoyed relief and was that relief in a reduction in the prednisone dose or was it independent of simply lowering the prednisone? One final question and that is to what extent do other patients supplement the Prednisone with Tylenol and how much and when? Thanks in advance for any words of wisdom.