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Can't get a definitive diagnosis
Autoimmune Diseases | Last Active: Dec 4, 2021 | Replies (27)Comment receiving replies
I don't live near the Mayo Clinic either, I fly in and spend time there as directed. Please request an appointment and have a full workup done to determine your diagnosis. I've had genetic tests done too, I have an autoimmune disease, and genetic tests don't really cut the mustard for diagnosing autoimmune disease. There are 90+ different autoimmune disease, and environment and lifestyle play an important part of the equation.
Replies to "I don't live near the Mayo Clinic either, I fly in and spend time there as..."
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I am not willing to waste another $10,000, either. I spent May, June, July and most of August at Mayo in Phoenix. I came away with no solid diagnosis, in spite of going there just for the diagnosis. I did lose my thyroid to surgery there. The rest was mostly sitting around, waiting for something positive to happen. It never did. They did not bother doing what I would have considered a full workup. There won't be another time.