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Adrenal Cancer: Anyone else have this?

Cancer | Last Active: Dec 18, 2022 | Replies (61)

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@becsbuddy

Good afternoon @tomelledge Welcome to MayoClinicConnect, a place where members share their experiences of their health journeys and give and get information. But we don’t try to force our opinions on others! I’m so sorry that you ave a second type of adrenal cancer. Did your doctor explain everything about radiation therapy? I think its more pinpoint today so shouldn’t damage your organs.
You sound like you are very calm and accepting of whatever comes..has your doctor explained what the future brings for you?

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Replies to "Good afternoon @tomelledge Welcome to MayoClinicConnect, a place where members share their experiences of their health..."

Good Morning Becky. Thanks for the welcome. First, I'm sorry if you and others believe I'm trying to force my opinion on others. Take my opinion for what it's worth. I'm not a doctor, I'm just sharing my experience so others can see there are many options. And yes, my radiation oncologist did explain that I'd be "burning" several internal organs. I've had head neck radiation so I'm not new to radiation and it's possible damage or its ability to bend around various organs etc. I'd be very interested in hearing from someone who has had radiation and what actually happened to their various organs. I'm not sure what you mean by second type of adrenal cancer?

One of my oncologists, Dr Hammer, called me an enigma. My experience with ACC is unusual. To go 7 years without a recurrence or metastasis and then have a new tumor pop up is not normal I guess... I'm NED right now a year and a half after my second tumor removal. I think that is a good sign from all of the research I've done.

I've been called stoic so I guess I'm pretty calm and I'm proactive. I do a lot of research on ACC and on what others have done to help themselves. I won't mention all of what I'm doing as it is what resonates with me to live a long and happy life, however long it may be. And I get checked with CT or MRI twice a year.

As for my future, no, I haven't had a doctor predict my future. I've talked to or read stories from other survivors so I know what the future may hold but I also know the statistics and know that there are some who survive. That is what I'm continuously striving for.