Trying to recover from a c. diff infection (Clostridium difficile)

Posted by acres @acres, Apr 12, 2016

I am trying to recover from a c.diff infection. This started with taking clindamycin in mid January and 3 days later I became ill with diarrhea and felt sick, loss of appetite etc...Went to the er twice, tested negative for c.diff on my 2nd visit. The Dr. told me to take imodium to rest my colon since I tested negative. That evening I had diarrhea and took the Imodium. Became constipated with pain lower right side. I went to a GI dr. pleading for help, I did another stool test and it came back positive for c.diff. I tried flagyl but could not tolerate the side effects. Tried vancomycin for 10 days. Did not work. Tested positive again, Went to a new gi doctor who prescribed dificid for ten days. I am 31 days post dificid and I have almost constant gut rumbling and urge to go. My 1st bm in the morning is usually semi normal, but after that they are always either pencil thin and or small pieces (2 to 5 times a day). This has been my routine since the vancomycin. I do not get dull blown diarrhea..... My dr. wants me to have a colonoscopy but I an scared that the cleansing will wipe out all my good flora. I currently take 2 florastor pills and 1/2 vsl3 per day. I eat fermented pickles for the probiotics as well..... I have many food intolerances since this whole mess began (fiber, many vegatables, dairy). I also have a strange taste in my mouth most of the time, have very little energy and fight with depression. My primary gave me Xanax .25 but I only take them at night when I cannot sleep...... Went to a nutritionist who put me on a no wheat, soy, dairy, gluten diet. Does not seem to be helping or hurting. I lost 20 pounds and cannot gain any weight (I weigh 120 at 5'7")... I am thinking it might be sibo, or candida but cannot find a dr. to test for these....I am in the right place for help or advice ? The urge to go is awful and limits my once active lifestyle.....
Thank you, Scott

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@mandyhope

I know I'm responding to an old post, but it just rang so true with me. I had my gallbladder removed in October 2020. Up until then, I'd been losing weight without trying. In June 2020, I was 175. By August, I was 147 and from October to November, I'd lost another 30 pounds. After multiple ER trips, I was finally diagnosed with C. Diff and admitted to the hospital for a week. Since then, I wind up in the ER about every 4-6 weeks with crippling pains in my stomach. Every test comes back negative and I've been to doctors at 3 different hospitals and no one can figure out what's wrong. I've had a hiatal hernia that's been repaired three times and has reopened, however, the doctors say there's not enough tissue to repair it again. I'm at my wits end and I just pray that the doctors at Mayo can figure this out. Thanks for listening.

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I really hope they figure out where your pain is coming from. How is your bowel? C Diff destroys the body and I always wonder if the gut will ever be normal again.

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@mhi

I really hope they figure out where your pain is coming from. How is your bowel? C Diff destroys the body and I always wonder if the gut will ever be normal again.

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I hope they can help figure out things,......a person can really feel helpless at times. You made a comment that C-diff destroys the body,.........and you wonder if the gut will ever be normal again. This terrifies me. But I understand that once the C-diff is gone your body begins to heal. Slowly. Slowly. Slowly. I'm in my fourth month of recovery and my bowels are not normal. I have to use Bisacodyl to have a BM. (I do have a tortuous intestine and a very slow transit, so that is part of the problem.) But I have to remind myself that it takes time to heal and I've come a long way with my energy levels since I was diagnosed. I truly thought I might die. It was awful. No more Clindamycin for me!

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@euqcaj

I hope they can help figure out things,......a person can really feel helpless at times. You made a comment that C-diff destroys the body,.........and you wonder if the gut will ever be normal again. This terrifies me. But I understand that once the C-diff is gone your body begins to heal. Slowly. Slowly. Slowly. I'm in my fourth month of recovery and my bowels are not normal. I have to use Bisacodyl to have a BM. (I do have a tortuous intestine and a very slow transit, so that is part of the problem.) But I have to remind myself that it takes time to heal and I've come a long way with my energy levels since I was diagnosed. I truly thought I might die. It was awful. No more Clindamycin for me!

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You are right it does take lots of time to heal so we just have to be patient. I am on the opposite side seems I developed post-inf IBS and I do go more to the washroom since c Diff. Wishing you continue to get better and I am terrified of taking any antibiotic going forward!!

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Hi, I also had my gallbladder removed recently. I had mine removed in March this year. My gastroenterologist just told me I have C- Diff. I’ve been suffering terribly from it. I was 135 a month and a half ago I’m now104. I don’t know much about it except for what I’ve read on the web. Can anyone give me some advice, please. I’m so sorry you’re not feeling well. I truly hope you find some answers soon. Prayers to you.

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@lauren915

Hi, I also had my gallbladder removed recently. I had mine removed in March this year. My gastroenterologist just told me I have C- Diff. I’ve been suffering terribly from it. I was 135 a month and a half ago I’m now104. I don’t know much about it except for what I’ve read on the web. Can anyone give me some advice, please. I’m so sorry you’re not feeling well. I truly hope you find some answers soon. Prayers to you.

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I assume they gave you Vancomycin to get rid of the C-diff. That's what they gave me and it got rid of it but the recovery is slow.

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@lauren915

Hi, I also had my gallbladder removed recently. I had mine removed in March this year. My gastroenterologist just told me I have C- Diff. I’ve been suffering terribly from it. I was 135 a month and a half ago I’m now104. I don’t know much about it except for what I’ve read on the web. Can anyone give me some advice, please. I’m so sorry you’re not feeling well. I truly hope you find some answers soon. Prayers to you.

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I am sorry to hear you have contracted c Diff was it from the surgery you had for being on antibiotic in the hospital? How long you had c Diff for and what were you given for it? Make sure you are taking S Boulardii with it two hours apart from the antibiotic it helps a lot fighting C Diff. What is your diet like what have you been eating? My heart goes out to you it is a very slow recovery. Please ask away whatever questions you have we’ve all been there fighting this vicious bacteria.

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I am finishing up my 2nd round of meds for c diff. I am on my last week of 14 day, then a taper. I am terrified that once my vancomycin is completed it will come back again. My dr said it could take 5/6 months before back to feeling normal. What if you need to take antibiotics again.

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Thank you so much for your replies. My dr gave me vancomycin. I’ve been eating very bland foods and low fat since my gallbladder was removed. A lot of grilled chicken, vegetables, I do still eat pasta I can’t give that up. My drs feel from all the IV antibiotics maybe that is how I got it or the hospital stay. I have an appointment with my gastroenterologist on Monday so I’ll know more. I was in the hospital for 7 days. When I first arrived I was septic. I was jaundice and not in good shape. They placed a biliary stent in my duct to help the blockage and a few days later removed my gallbladder. I also went into bradycardia my second day there. I don’t know if any of that has to do with how I contacted C Diff. I’m 42 and I feel right now as if I am 95. This C Diff is awful. I’m afraid to leave my house in fear I’ll have to run to the bathroom. I pray that you will all feel better soon. Thank you so much for letting me vent and being here for me. I truly appreciate it with all my heart

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@lauren915

Thank you so much for your replies. My dr gave me vancomycin. I’ve been eating very bland foods and low fat since my gallbladder was removed. A lot of grilled chicken, vegetables, I do still eat pasta I can’t give that up. My drs feel from all the IV antibiotics maybe that is how I got it or the hospital stay. I have an appointment with my gastroenterologist on Monday so I’ll know more. I was in the hospital for 7 days. When I first arrived I was septic. I was jaundice and not in good shape. They placed a biliary stent in my duct to help the blockage and a few days later removed my gallbladder. I also went into bradycardia my second day there. I don’t know if any of that has to do with how I contacted C Diff. I’m 42 and I feel right now as if I am 95. This C Diff is awful. I’m afraid to leave my house in fear I’ll have to run to the bathroom. I pray that you will all feel better soon. Thank you so much for letting me vent and being here for me. I truly appreciate it with all my heart

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My heart goes out to you I totally understand what you are going through. It is awful that’s exactly how I felt when my c Diff was active. I went through two rounds of antibiotic to get rid of it I had a recurrence and 10 months after now and still terrified and still having gut issues it will take a long time to recover. I worked with a nutritionist to know what I eat. Most importantly once you feel better you need to ensure you are upping you fiber intake to help the good gut flora. Take the boulardii and probiotic. Practise lots and lots of hand washing and use bleach in your toilet that’s the only thing to get rid of c Diff spores. Are you taking any probiotic or anything with the antibiotic now?

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@ljh02

I am finishing up my 2nd round of meds for c diff. I am on my last week of 14 day, then a taper. I am terrified that once my vancomycin is completed it will come back again. My dr said it could take 5/6 months before back to feeling normal. What if you need to take antibiotics again.

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I really hope this will be end of story for you. Yes in fact It does take a long time even sometime longer than 6 months. I am 10 months into recovery and still have lots of lingering symptoms. In fact they repeated the c Diff test for me couple days ago and haven’t heard back so I will take that as good news. Sometimes you can develop post inf IBS and this can take time and I think this is what I developed. What are you taking with your antibiotic? Keep us posted and wishing you a speedy recovery.

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