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Undiagnosed with an exact cause, but have PN

Neuropathy | Last Active: Jun 26, 2021 | Replies (6)

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@ks1960

I am so sorry you are dealing with this. My PN, which appeared just before the lumbar radiculopathy, is caused by compression of the spinal nerve. When the disc herniated, the pain became … intense. I can’t take opioids, and the only thing that really helped was steroids (which I could only take for 2 weeks). During the worst of it, Gabapentin did nothing but make me sleepy, which was not a bad thing since I mostly had to stay in bed.

After trying physical therapy, aqua therapy, acupuncture, rest, and epidural steroid injections, I finally had back surgery to decompress the spine. This resolved 90% of the pain, and about 50% of the numbness.

To a large extent, my goal now is to learn to live with the numbness. I do a lot of exercise focusing on balance, and do regular reflexology on the numb foot. At this point I take Gabapentin several times a week when the foot burns or hurts, use an ice boot, and have amassed a large assortment of orthopedic shoes!! For me, the regimen of vitamins and supplements effective for many people, have not been productive, although I continue high doses of B12.

Do NOT be intimidated by your medical team. Ask them point blank to explain until you clearly understand. Trust me - they are just regular people and honestly when it comes to neuropathy I think they are just trying to hide what they don’t know!!

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Replies to "I am so sorry you are dealing with this. My PN, which appeared just before the..."

Thank you for responding and for giving me some hope. I am glad your surgery helped you. And thank you for telling me not to be intimidated by the doctors. I do expect too much of them. You are very lucky one of your doctors figured out your problem. How was your spinal compression identified? Was it by MRI or something else? I admire you for learning to live with the numbness and foot pain. I will try the B12 doses. But most of all, I will look for a new team of doctors. Thanks again for writing.

Hello @ks1960, I would like to add my welcome to Connect along with @frankie7 and other members. Thank you for sharing your neuropathy journey. You may want to join in the following discussion and meet other members sharing their journey with neuropathy and what they have experienced.

Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

Do you mind sharing what you were searching for when you found Connect?