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Pituitary macroadenoma vs myasthenia

Brain Tumor | Last Active: Jun 28, 2021 | Replies (3)

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@colleenyoung

Hi @skhollandmt, I added your discussion to the Brain Tumor group (https://connect.mayoclinic.org/group/brain-tumor-support-group/) and the Autoimmune Diseases group (https://connect.mayoclinic.org/group/autoimmune-diseases/) to help connect you with other members who have experience with pituitary macroadenomas, like @medfordor @daphne2020 @astaingegerdm @rubyjane @gemttaz @rubyjane @dmedina71

You can read about some of their experiences in these discussions:
– Saying Hello! Just had surgery for a pituitary tumor https://connect.mayoclinic.org/discussion/saying-hello-1/
– Pituitary microadenoma causing hormonal issues https://connect.mayoclinic.org/discussion/pituitary-microadenoma/
– Pituitary macroadenoma tumor removal and short term memory loss https://connect.mayoclinic.org/discussion/pituitary-macroadenoma-and-short-term-memory-loss/

Skhollandmt, I can understand your need for understanding, hope, and support as you search for answers. Are you now in care at Mayo Clinic or will you be heading there soon?

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Replies to "Hi @skhollandmt, I added your discussion to the Brain Tumor group (https://connect.mayoclinic.org/group/brain-tumor-support-group/) and the Autoimmune Diseases..."

Thanks for all the information and adding me to the other groups. I will see Mayo 9/1 and 9/2 for tests and consults. I'm very hopeful for some real answers but whatever has been going on for me has drastically worsened since April. I think my tolerance level has been tested to the breaking point and that's what's adding to my depression. You get so tired of not having answers. I'm a nurse and totally understand that after negative tests doctors begin to believe your symptoms either don't exist or are directly caused by mental health and not a physical disorder. I see my quality of life going down the drain and can't believe some physicians will continue to tell me there's nothing more to do. Mayo is "my last hope" in many ways so I'm praying they can help me! Yet at the same time I'm scared they will also find that "after extensive testing we cannot find anything wrong with you". I read so many people on the pituitary forums having similiar symptoms......yet I've been consistently told that pituitary tumors that are non functioning cannot cause headaches, or fatigue, or muscle weakness, depression, loss of balance, dizziness, etc. Thank God for this group and being able to connect with others!