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Multiple Sclerosis (MS) - please introduce yourself

Brain & Nervous System | Last Active: Apr 9 9:54am | Replies (326)
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@kip170

In the beginning have seen a ent dr.to determine balance.not the case.went to my neurologist to determine dizziness and loss of balance for a long time!! The latest i went to a otolaryngology.she says you hearing loss in the right ear and left ear.A VNG report is abnormal.square wave nystagmus and significant anisotropic positional nostalgia suggests CMS involment.I do have MS,but they say no connection.this has been going on for years! I might note lying down after dizziness it does subside but the next day might get it again. This condition i have is so sporadic,I might not get it again without warning,please help!!!!!!

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Replies to "In the beginning have seen a ent dr.to determine balance.not the case.went to my neurologist to..."
Amanda Burnett | @amandaa | Jun 26, 2021

Hi @kip170 welcome to Mayo Clinic Connect! I am sorry to hear that you are having so many different symptoms. You'll notice I moved your post to a discussion about MS to connect you with other members to determine if there is any correlation between your MS and symptoms you are experiencing.
I'd like to invite @helenlodahl, @chris462, and @laurieb63 back to the conversation.

You might be interested in this article that explains some similar problems.
"Many people with MS experience episodes of dizziness, lightheadedness, vertigo, or feeling off-balance. Find out what causes the sensation and what you can ..." -- Dizziness and Vertigo in Multiple Sclerosis: https://www.healthline.com/health/multiple-sclerosis/dizziness-vertigo

@kip170 How long have you had MS?

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kco | @kco | Jun 29, 2021

I was diagnosed with Meniere's Disease 10 years before my MS diagnosis. My symptoms were vertigo and hearing loss one-sided that fluctuated. They say MS probably doesn't have anything to do with my Meniere's. I don't know if I believe that. Vertigo is so hard to deal with. I take meclizine for vertigo. Have they talked about Meniere's or benign positional vertigo? I'm sorry you are going through this.

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