← Return to Can't get a definitive diagnosis

Discussion

Can't get a definitive diagnosis

Autoimmune Diseases | Last Active: Dec 4, 2021 | Replies (27)

Comment receiving replies
@becsbuddy

Hi @linda2114 i can only imagine how frustrated you are feeling. I, too, went through several months of being brushed of, told it was all in my heat, etc. But i knew it was real. My sister has been diagnosed with an autoimmune disease 3 years earlier. I finally got a true diagnosis at the university medical center near us.

Then, my sister starte looking at the families genetic ties to autoimmune diseases. Here is the link she sent me.
https://www.newswise.com//articles/know-your-familys-autoimmune-quotient-aq-campaign-highlights-national-autoimmune-diseases-awareness-month
The article helped us answer many questions
The doctor mentioned mixed connective tissue disorder. Did he/she suggest any treatment or plan for further testing?

Jump to this post


Replies to "Hi @linda2114 i can only imagine how frustrated you are feeling. I, too, went through several..."

I appreciate the information/link. Doctor referred me to the University of Pennsylvania. And when I contacted them they told me that they weren't currently running any clinicals on autoimmune disorders. They were concentrating on Alzheimer's dementia and pediatric illnesses