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Anyone have experience with Low Dose Naltrexone instead of prednisone?
Polymyalgia Rheumatica (PMR) | Last Active: Feb 11, 2023 | Replies (72)Comment receiving replies
The most interesting research I found is that this drug has been around for over 20 years for autoimmune diseases, Fibromyalgia, and a whole lot more and yet we only hear about it by searching for articles or from friends and family who use it. It is a non toxic drug with only a few rare side effects.
I have mentioned my use of LDN to several people who could possibly benefit from it. However, they mostly will not research it. They assume it is a narcotic. It is not a narcotic. There is no withdrawal if you choose to go off of it. There is no “high” when you take it. It works on your endorphins to make you feel better.
I wish everyone with chronic pain etc would just give it a try. It’s a game changer for so many.
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Thank you for the info. I have neuropathy in both feet and legs from the knee down after knee replacement surgery. I am interested in LDN and now need to find a doc who can prescribe it and also follow progress.
Fran
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I’m on Lyrica it isn’t helping much and I can not go above 100mg because the pain feels wore and my legs swell. I’m being treated even though I was told by a rheumatologist I don’t have it. I’ve had been tested for Lyme, small fiber neuropathy. Had a EMG which showed I had lower back issues. Had MRI which showed a herniated disc, I did all the physical therapy, chiropractor. Had spinal surgery as a last resort. It’s been over 4 weeks and I have the same pain. Very sore feet, I can feel the folds in them, my skin is sensitive to everything. I have lots of odd sensations in my legs and buttocks when I walk. I feel the pain starting to affect my arm, upper back, shoulders and hand. I feel knots under my skin that hurt but the doctors don’t listen when I tell them that. This all started from a ankle injury. I use to be very active, I miss my life before this but I keep fighting anyway. Thanks for sharing!