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Anyone have experience with Low Dose Naltrexone instead of prednisone?

Polymyalgia Rheumatica (PMR) | Last Active: Apr 12 8:46pm | Replies (85)
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@lutp

I have been on Low Dose Naltrexone for 4 months starting at 1.5mg and now at 3.0mg. I was prescribed it by Mayo Pain Clinic for pain from Rheumatoid Arthritis and Fibromyalgia.
It has been a game changer. After just a few days my burning skin from Fibro went away and hasn’t come back. My brain fog has disappeared.
My joint pain from RA is 80% better than before LDN. I am still on Humira for RA to slow progression of the disease but since starting LDN, I no longer take 6-8 Advil a day nor any other pain reliever.
My terrible insomnia has gone away since starting LDN. I am now able to go to sleep within about 20 minutes and sleep about 8 hours every night.
I still have some fatigue from RA and Fibro but It is 50% better than before LDN.
It took me a year of researching LDN to find a doctor who would prescribe it because it is off label and is only gotten with a prescription and filled at a compounding pharmacy.
It’s definitely a game changer for me.

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Replies to "I have been on Low Dose Naltrexone for 4 months starting at 1.5mg and now at..."
John, Volunteer Mentor | @johnbishop | Jun 24, 2021

Hello @lutp, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. Thank you for sharing your experience with low dose naltrexone (LDN) and that a person needs to be a strong advocate for their health by learning as much as they can and doing their own research.

I'm wondering if @msstoppainnagginme and @fighter may also have some thoughts on their experience with LDN.

Are you able to share any tips on the research you found?

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suzygwr | @suzygwr | Apr 12 8:46pm

How long did it take to feel the full effects? I’ve gotten up to 3 mg and holding for a few weeks now but cannot say I notice anything. Maybe I’d be worse without but I just can’t know. My doc said I had fibromyalgia but not true rheumatoid arthritis. Perhaps that’s it. I do have autoimmune markers.

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