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Member Neuropathy Journey Stories: What's Yours?

Neuropathy | Last Active: May 18 6:58pm | Replies (554)

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@johnbishop

Hello KT @webdx2, Welcome to Connect and thank you for sharing your neuropathy journey. Knowledge is power and the more you learn about your condition, the better questions you can ask your doctors and hopefully find something that helps with your symptoms. You are off to a great start and hats off to your girlfriend for getting you to take the first step. Based on you mentioning severe pain to the touch underneath the back of your skull you may want to view the following discussion to see if it matches some of your symptoms.

Occipital Neuralgia: https://connect.mayoclinic.org/discussion/occipital-neuralgia/

More information that may be helpful:
-- Occipital Neuralgia: https://www.aans.org/en/Patients/Neurosurgical-Conditions-and-Treatments/Occipital-Neuralgia
-- What is this pain in the back of my head?: https://www.medicalnewstoday.com/articles/321017#occipital-neuralgia

If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

Do mind sharing which of your symptoms bothers you the most?

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Replies to "Hello KT @webdx2, Welcome to Connect and thank you for sharing your neuropathy journey. Knowledge is..."

Thank you for the response and the links, John!

It’s hard for me to answer your question. I try to look at things long term and feel that I can get hearing aids to help with hearing and glasses to help with vision, but when I comes to the balance/dizziness and headaches, those are things that I have a little less control over. I did buy a cane/walking stick that I know I’ll be using due to the SFN impact to my lower legs and feet, but that only helps so much.

I will certainly keep networking here and asking questions as you suggested and see what comes from it. Thanks again!