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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
@nannette and @windwalker....Nan, did you have silent acid reflux or heartburn? I have no heartburn. The only thing I have is some clearing of my throat and maybe a little extra saliva/acid coming to my throat sometimes...I didn't know if that was due to bronchiectasis or not, because this is all new to me.
@windwalker....how long did it take for your symptoms to clear? Were you put on medicine for acid reflux or just diet change? Did you have a scope done again, or how did you know yours cleared? Thank you!
I have been doing some researching...and some firm thoughts are that PPI's don't work on people with silent acid reflux. Thanks for your replies in advance. Amy
Replies to "@nannette and @windwalker....Nan, did you have silent acid reflux or heartburn? I have no heartburn. The..."
<br><br><br><br><br>Hi Amy. I only took the PPI for several weeks and the burning in my <br>esophagus went away. I still take some from time to time for stomach issues, but <br>not very often. That was several years ago. I have not been re-scoped since <br>then. I had a swallow test and a 24 hr acid level test done last Dec. Not <br>totally sure if they can tell from those tests or not. Those tests were part of <br>the pre-qual transplant panal. I feel like my GERD is gone or minimal, but don't <br>know that for a fact it is gone.<br> <br><br>
<br><br><br><br><br>I cleared my throat for 45 yrs.due to a combination of post nasal drip and <br>gluten allergies. Every time I'd eat bread, cake, or anything with flour, mucus <br>would instantly pool in my lungs; followed by hard coughing. I have been mostly <br>gluten free for years and am now on tobramycin which dried up everything , even <br>the post nasal drip. And I don't cough anymore!<br> <br><br>
@beatitnow Amy, I had/have silent reflux and never had heartburn. I'm on 20mg of Pantoprazole but have been on it for three months now and I also just finished the 12 months of meds. My reflux is much better. I still have some throat clearing( and it was really bad about six months ago when I was halfway through the Mac meds) but it's not as bad as it was. I bought the wedge pillow... am trying to watch what I eat and not eat too late. I'm also going to try to switch over to Zantac so I can get off the PPI since I'm doing better. The hardest thing for me has been trying to figure out which foods cause the reflux. I think tomato sauce is a trigger for me. And I try not to eat anything fried anymore. Hope that helps. Nan
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Amy
I was told I had silent reflux for a full year. PPIs, diet, elevated head of bed didn't change my throat clearing. Had the gold standard test for reflux at Mayo. 24 hour Impedence test. I do NOT have ant reflux. I clear my throats and have tons of mucous. My MAC is supposedly gone. Now theyre saying it's inflamation in my nose. My sinuses are healthy - very honestly, tons of people have it. I don't think they really know why.
What do others think?
Kay S