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At a loss, multiple consultations still no answer...any idea?
Autoimmune Diseases | Last Active: Nov 28, 2023 | Replies (338)Comment receiving replies
@change25 Your pictures the red butterfly on your cheeks, and mine, set to to searching in my own records and scans. I found those pictures, or like them, on places like Wikipedia, and on my own genome analysis. I do not know about yours, but mine is now dx as "Systemic Capillary Leak Syndrome", also called "Clarkson's Disease." It is probably related to the genes/proteins related to my GSN/FKTN/Brugada syndromes JAK2, CALR, or MPL. I have the JAK2, the CALR, but not the MPL. I am personally very glad to know it is not the shingles the doc and hospital called it on me, without evidence.
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Hey Karl, a dermatologist diagnosed me with rosacea. There could be more to the rash than what was previously diagnosed. So it may be worth going elsewhere for a 2nd opinion, cheers.