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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: Apr 16 10:18am | Replies (386)

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@kenyalama

Dear buddies in struggles
You also inspire me. It is good to be in touch. Regarding PT you are not alone. It has only worsened my pain every time. Some doctors think we don’t have the will to improve
How would we not?
Do they think we enjoy this life ?
Of course there are doctors who are sympathetic but not many
And it was so interesting to learn that AA does not have a medical code. No wonder we never see mentioned in our medical history except, in my case, the MAYO CLINIC and only a couple more here
Let’s keep our chats please!
Take care!

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Replies to "Dear buddies in struggles You also inspire me. It is good to be in touch. Regarding..."

I so wish I could find (have the nerve to approach?) my pain mgmt dr or rheumatologist about Tennant protocol Re: AA.

My journey started over 35 years ago when I started having problems when I would get off work by the time I got home the pain would start then the stiffness this went on for about two years I keep going to doctors with no answer until I went to a orthopedic surgeon after a lot of test he said he couldn’t find anything but there was one more test he could run it was a genetic test so they did and it came back positive I had ankylosis spondylitis he sent me to a rheumatologist he was not a bad doctor but I keep winning up in the hospital so I took my records to a different doctor and asked if they would do different and they said what they would do so I went back to my doctor and told him what they said he said he was not comfortable doing that so I change and I was with my new doctor for over 30 years she retired last year and I am now looking for a new doctor for that so use your own head to find someone who will listen to you don’t be afraid to get a second opinion on what is going on with you.