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@megan123

I have Bronchiectasis and NTM Mac. Recently had a cat scan and it showed some new bud tree nodules. Does this mean my NTM is active??? My oulmonary guy never explains anything. In process of a second opinion. Have minimal symptoms of Mac. Little sputum, no cough. Have been getting some nite sweats but not sure if it's menopause. help...

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Replies to "I have Bronchiectasis and NTM Mac. Recently had a cat scan and it showed some new..."

<br><br><br><br><br>I have 'Bud in Tree' going on in my lungs too. It said on my medical report <br>that it may indicate small airway disease. (as if I did not have enough other <br>lung diseases!) It may be part of the bronchecstasis disease process. You can <br>Google more info on it and then ask your dr questions.<br> <br><br>

Megan it would probably be advisable to be treated at some point for the MAC. If you do not get treated your lungs will continue to be scarred which potentially will cause more problems. It will not go away on its own. Ask your doctor for an in depth explanation. He should be showing you your scans and teaching you from them. If he is not willing to do that you might consider finding another infectious disease physician.

Go to National Jewish video's that you can access via this website. Listen to the dr's talk about MAC. Got all the info I needed from listening to them.

@becky33, Yes, I'm so glad you watched. They have them for 2015 and 2016. Everyone should watch them and wait while and re watch them . Its information you cant get anywhere else. Im going through my second time and taking notes this time. We have to arm ousseves with information!! Stay strong
Becky

Tk u so much. I know I have to start on meds soon. In the process of getting new Mac dr.
In Toronto the system sucks. U have to wait. Hopefully I can get in sooner for new Dr, but u r right I know I have to start meds...

@becky33, Im glad you watched the videos. They are so worth the time. I am watching them again and taking notes this time. How did your doctor's appointment go last week? Im also wondering about all the rain and flooding. If you are on the missippi river, are you still able to stay in your home or do you have to leave? I hope everythings ok!
Take care ,
Becky

<br><br><br><br><br>Hello, I searched the National Jewish Health web site and could not find <br>the videos that pertain to our conditions. <br> <br><br>

Concerning the videos at NJH... could someone provide us a link to see them, or tell us how to find them? ... the ones that are about MAC and bronchiectasis.... would be most helpful. Thank you! Pamela

@windwalker, sorry i could give you a promt response on the NTM videos. If you havent found them yet try for the 2016 videos http://www.nationaljewish.org/ntmvideos2016. And for the 2015 videos i searched on http://www.youtube.com , then i typed in the search bar NTM video 2015 at national jewish health. Each topic is about 40 minutes. Dr charles daley starts with a ten minute welcome, then dr michael iseman does historical perspective, then dr richard wallace the microbiology of ntm, then dr gwen huitt to treat or not to treat, dr jakko van ingen beyond skinny ladies, then a morning panel discussion, the afternoon ntm lecture series dr rachael thomson ntm everywhere, then dr ken oliver treatment of ntm, then dr john Mitchell when antibiotics are not enough , then beth McKnight a patient's perspective, then an afternoon panel discussion. Youtube does not have them in order so i listed them in the order i remembered seeing them. i hope you can find them, let me know either way. Stay strong and Have a wonderful day!
Becky

@pamalasc1, i just posted to windwalker who requested the same information and i think it post to where everyone can see it. If not let me know and i will try to repost the information. Have a good day.
Becky