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PMR and the new Shingles vaccine
Polymyalgia Rheumatica (PMR) | Last Active: Dec 27, 2021 | Replies (67)Comment receiving replies
Hello @tsc, Welcome to Connect. Thank you for sharing your experience with getting a diagnosis for PMR and GCA. It is extremely helpful when members share their experience with other members who are trying to find answers. PMR can be a little different for each of us. There are a few other discussions on GCA that you might want to view.
-- Giant cell arteritis: https://connect.mayoclinic.org/discussion/giant-cell-arteritis-20c716/
-- Medications for Temporal Arteritis/Giant Cell Arteritis (GCA): https://connect.mayoclinic.org/discussion/temperol-arteritis-or-giant-cell-arteritis/
-- GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica): https://connect.mayoclinic.org/discussion/temporal-arteritis-1/
What kind of tapering schedule did your rheumatologist suggest for you to try?
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Prior to the biopsy, he put me on 40 mg. With the positive diagnosis, he told me to taper down by 5 mg after two weeks at 40, so 35 mg the next two weeks, then 30mg, next two weeks, etc. I've been at 30 since June 17. My inflammation was down from 10.6 in May to 0.2 last week,(C-Reactive Protein). It is to be repeated monthly. He prefers the C-RP to the sed rate. So far so good. I saw the debilitating effects of Prednisone on my mother-in-law and aunt (who also had GCA), but so far, for me, it's working well. The only problem has been insomnia so far, and that's getting better.
John, thanks for the links. I had trouble finding the discussions for GCA.