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Anyone been diagnosed with arachnoiditis after spine surgery?
Spine Health | Last Active: Sep 6 4:23pm | Replies (179)Comment receiving replies
Dear John, I’m sad to say I have had no respite, and things are getting exponentially more difficult, and I can offer nothing that is helping. It is quite a lonely journey, isn’t it? I had fusion surgery at L 4/5, along with laminectomy and discectomy 13 years ago. My pain management has gone from least invasive upward, and ending with radio frequency, which was a reactive three weeks of H—L. The electric “evader” was tried to no avail. Then he looked at me and said there were no more options, and with trial and error, we came up with serious pain meds.
I bought two of Dr. Tennant’s books, and watched his webinar of 2020. I bought his recommended Tumeric/Curcumin and pregnenolone at a health food store, and we shall see. I live in NYC, I have Medicare and Medicaid with no out of pocket medical options due to personal finances. However, this Tennant approach of going through blood/brain barrier makes sense. Do you know doctors here who are willing to try his protocols for this mind-destroying pain?
Sometimes I wonder if I’m doing something wrong, like trying to “trick” contractions to spiral out. What an imagination, heh.
Have you any thoughts on things that may be helpful?
Again, thank you, John for reaching out.
Replies to "Dear John, I’m sad to say I have had no respite, and things are getting exponentially..."
There is another discussion you may want to check out that other members have used to treat chronic pain from various conditions - Myofascial Release Therapy (MFR) for treating compression and pain: https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
My pain management doctor just offered me Belbuca for pain. She said it works for both nerve pain and "regular" pain. Not sure if regular pain is the correct wording there but hope it makes sense. She gave me a big packet of info. on it. Has anyone heard of it before and more importantly, has anyone tried it? The info. (side affects) seems kind of scary but I think I might try it out. It's a little square that you put on the inside of your cheek and it dissolves offering 'round the clock pain relief. Can you imagine??? I had Fentanyl patches for 13 years without any real troubles. I would get a little sick if I got too hot so I had to be careful about being outside when it was hot, in the shower, etc. Other than that, it was a great pain reliever. When they had me get rid of it I didn't have any bad side affects at all. I've never heard of Belbuca before but I'm curious to find out if it offers similar pain control. It might be something to ask your doctors about.
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Oh, and “yes I have been diagnosed with it. However, a neurologist he sent me to, had another MRI done, and it was not in that report.