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@johnbishop

Hello @judithelaine, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. I'm sorry to hear you are in so much pain. Have you been diagnosed with arachnoiditis? Are you able to share about any treatments you've had and had any relief?

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Replies to "Hello @judithelaine, Welcome to Connect, an online community where patients and caregivers share their experiences, find..."

Dear John, I’m sad to say I have had no respite, and things are getting exponentially more difficult, and I can offer nothing that is helping. It is quite a lonely journey, isn’t it? I had fusion surgery at L 4/5, along with laminectomy and discectomy 13 years ago. My pain management has gone from least invasive upward, and ending with radio frequency, which was a reactive three weeks of H—L. The electric “evader” was tried to no avail. Then he looked at me and said there were no more options, and with trial and error, we came up with serious pain meds.

I bought two of Dr. Tennant’s books, and watched his webinar of 2020. I bought his recommended Tumeric/Curcumin and pregnenolone at a health food store, and we shall see. I live in NYC, I have Medicare and Medicaid with no out of pocket medical options due to personal finances. However, this Tennant approach of going through blood/brain barrier makes sense. Do you know doctors here who are willing to try his protocols for this mind-destroying pain?

Sometimes I wonder if I’m doing something wrong, like trying to “trick” contractions to spiral out. What an imagination, heh.

Have you any thoughts on things that may be helpful?

Again, thank you, John for reaching out.