Hello, Becky. I just read your message. I'm leaving now to go p/u antibiotic I need asap for UTI. I spent 8hours last evening at the Mayo ED, again. Went to the Care Spot week-end available med care. The doctor told me I had to go asap to the hospital, that the tests she could do are limited and results she saw were concerning. I needed more help than was available anywhere but hospital.

I sent my PCP 3....THREE - (number of words is very limited, so it was all one message)...messages on his portal Thursday night - he's with a primary care group associated w/a large local hospital system. I used to be only involved with their doctors/hospitals, but after several serious and repeat episodes with incompetent doctors & staff, missed or no diagnoses, etc. I changed all my care to Mayo, except PCP, with whom I've been for 20+ years. He's good and has helped me, but I require more specialized care I get best at Mayo. I'm blessed!!!!!

I still must work with him. It's not working. 3 messages on Thursday night, called Friday morning to get instructions how he wanted to handle the UTI before the week-end. Spoke with his nurse. Never a call back .This is normal. Went to week-end care spot and ended up in hospital.

The doc at Mayo was admitting me, but sent me home, after speaking with 4 specialists, setting me up with a urologist and nephrologist and internist with specialty in nephrology. Protein levels in urine were so high, they quit counting, same with RBC, WBC, Leukacytes, Nitrites, hemoglobin, bacteria....all out of sight and they are very concerned with nephrotic syndrome, leaky kidney, leaking out proteins into the bladder rather than filtering them and sending out to the body to utilize all the goodies. Explains so much. Muscles don't get protein. Extreme fatigue. think of what our body does with the protein from kidneys. I'm apparently not getting the benefits and its damaging many areas. No sepsis in blood, but probably would have by Monday. So, here we go again.

I've been asking, begging PCP, Mayo docs to address the multiple UTI issue. For a year or more. Were these infections indicating this issue was developing???? Something was going on and should have been ck'd out. Wasn't. By anyone. This kind of thing makes me see red! It's happened multiple times with me and Rob and is so unacceptable on many levels. So, now I'm in crisis. I finally get to the doctors who can possibly help. Can cause clotting problems -stroke, heart, lungs. possibly related to problems I've been having the last several weeks.

So, Becky, I'm exhausted, discouraged yet pleased to finally have some positive action and hope this week to get answers. Back in fight mode, my friend. Had to get the adrenaline moving several months ago re my son and the cold turkey withdrawal by a doctor from Klonopin.....still and possibly will for years dealing with the problems from that. Now, I'm fighting for my own issues.

I'll deal with the ordering prescription later this week, after getting us both to multiple doc appts, getting him to a new chiropractor for help, and to massage. He's in pain now, bone on bone, muscle and nerve. much worse and needs help. Meds don't work. Here we go. Such constant long years of fighting to get help.

Time for me to get a mental readjustment! Can't see out the windows. It's been raining since yesterday, I keep the inside cool for breathing, so windows are fogged. Can't see the feeders or birds, certainly can't work with them today, so humid I can't breath well outside even if I had the strength to do anything. So, I read online about different birds, ck'd out a few I'm identifying, and when back from pharmacy, will spend time w/special music, my church services online, and resting this body. Tomorrow begins the fight to get Rob what he needs and to make the appts I need, contact everyone and move forward. Today, I survive and refresh. And, deal with intestinal reaction to IV antibiotic last night! And, clogged toilet!!!!!!!!!! HELP for crying out loud.

blessings all. May you have a lovely, peaceful refreshing day free of anxiety and fighting. And, please pray for the same for me. elizabeth