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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Hi everyone! I am writing this last minute because I am getting slightly nervous....I am supposed to have an endoscopy tomorrow to see if I have acid reflux. My primary doctor referred me for this because I told him that a lot of ladies have acid reflux that have MAC/MAI, and I have to clear my throat more than I used to. I DID NOT tell my pulmonologist, or ask his approval...(don't know if I should have). Should I be worried about doing this procedure while I am on the MAI Big Three drugs? And, worry about a possible infection? I live in Great Falls, Montana currently and they only have the procedure where they "put you out" and stick the tube down. I would love your advice, I can always cancel last minute even though I know they would not prefer that. Yes, I am feeling a little "irresponsible" right now. :/
Replies to "Hi everyone! I am writing this last minute because I am getting slightly nervous....I am supposed..."
@beatitnow, I am unfamiliar with your MAC?MAI and your medications. I want to say they I have had many endoscopies. Actually at three different facilities. I was also put out. Afterwards, I felt some abdominal discomfort and took Tylenol for it. Only once was I nauseous the next day.
I hope this helps.
Hug and prayers are attached to this reply.
Rosemary
@beatitnow, I am a silent observer but I couldn't help but see your post and wanted to tell you that I had an endoscopy while on the big three...was put out and had no problems at all, no infections. And they found I had higher than normal reflux. I personally feel like my reflux got much worse on the three drugs. That's a lot of acid being created in your stomach. So, I wouldn't worry. I think you'll be fine. And I was put on 20mg of Pantoprazole and now after about two months the reflux is much better. Hoping once I stop the drugs that I can wean myself off the Pantoprazole. Nan
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When I was first diagnosed with MAC, one of the next things the infectious disease doctors had me do was to have an endoscopy because I have GERD and they wanted to rule out some additional things. So I would say it is a good thing to have that done. That is my "opinion." I was not on the big three until after that testing but doubt that would be a problem. However, with that said it is also my "opinion" that there needs to be communication among your health care providers. Hope this is helpful. Irene