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@change25

It has been awhile, I hope everyone is well.

I recently visited a rhumatologist and I must say that I was rather impressed. I had a full examination checking my nerves and reflexes. He did not find any cause for concern. However, he was unable to identify the cause of my facial atrophy and pain and was concerned though put it down to malabsorption/hormones.

I've been partially diagnosed with chronic fatigue syndrome, Sjogren’s and scleroderma though further testing is required until he's certain. He's wrote a letter to my gp discussing what needs to be addressed. He has requested I have a full urine and stool sample along with seeing a gastroenterologist. Given my financial situation I've decided that in the meantime it's best to go down the NHS route as after discussing the cost involved he stated that I should avoid private care unless I have medical insurance which I do not unfortunately. I still intend to visit mayo but have cancelled my appointment for now. I'll go as far as I can with the NHS and then if nothing improves I'll go to the best.

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Replies to "It has been awhile, I hope everyone is well. I recently visited a rhumatologist and I..."

Good morning @change25 . I’m so glad that you’ve gotten some answers. Was the rheumatologist with the NHS? Have you been able to make any more appointments?
And keep doing what you’re doing—you’ve been successful so far! And we’re all right behind you! Becky