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Tapering off of Prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Feb 28 5:49am | Replies (313)

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@scpartain

Welcome to the group! I too am tapering after a severe bout of PMR that started in January after I received the Pfizer vaccine for Covid-19. I have been following my doctor's schedule of reducing the drug by 2.5 mgs. every two weeks and am down to 10 mgs currently. Next week I will go down to 7.5 mgs. So far, I have continued to improve even though I am cutting back. The doctor advised me that it would take at least three months for me to get completely off of the prednisone. I hope you are able to find some solutions for controlling your pain while you taper.

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Replies to "Welcome to the group! I too am tapering after a severe bout of PMR that started..."

Your taper seems to be going well. That's about normal. When I get to 7 I start to crash, so I'm back up to 8 mg again. It's tedious, and I'm really tired of it. I'd give anything to get off of the red, but I just can't seem to get there. I also do an injection on Friday of Actemra, and that was supposed to help, but so far it isn't happening. This has been a five year journey. It's great that you are having success with the taper. I'm really glad d for you.

Interesting ... my PMR began just before vaccinations ... still seems that super round of stress brought on my PMR ... recent retirement, quit heating the home with a wood stove, new HVAC heat pump system, Washington D C political system in turmoil, covid lockdown with nothing to do, nowhere to go. Too many hours on the couch watching news, no physical activity.