Boomer, I read the same thing .. those of us with Bronchiectasis absolutely should be subscribing to: Receive our FREE Weekly Newsletter. I totally agree and sent the below email to Dr. Aksamit at Mayo Clinic .. if/when he answers I will share his answer .. because PART of the article says: The next step is to do longer-term studies to investigate whether an earlier intervention, with slightly less aggressive therapies, could help prevent disease progression in patients.” That MATTERS to me since I have now been diagnosed with three bacteria including Pseudomonas aeruginosa bacterium. Hugs! Katherine

Dr. Aksamit, Obviously I am very concerned about this new issue of Pseudomonas aeruginosa bacterium .. just battling with MAC .. now fighting Bronchiectasis! I read the below article re: Removing Antibodies from Bloodstream May Reduce Chronic Lung Infections in Bronchiectasis .. and wondered if Mayo Clinic is working on this? If it is a current option for me? Thanks for your help! Katherine Fink #

Wow thats fantastic. Hope they speed up the process and get it into use soon.Thanks @boomerexpert

It is...but issue is US doing such research, not UK speeding it up...we must get this info in front of our docs and ask them to push for such research here.

@boomer , thanks for looking out for all of us. There is great information in " Bronchiectasis News Today". Spent alot of time there yesterday because I am always looking for something i can give my family so they can try to have some understanding of what we are going through. They have a search engine where you can put in topics and it will bring up articles about your topic. They highlight words and topics that will link you to more information and they have a print option so, my printer was humming yesterday. They also suggest articles at the bottom of the page and I found one yesterday about a doctor describing chronic illness. I highly recommend it. That artcle has a link to that doctors blog with very lighthearted and funny stories. Everyone should check it out. Thanks for the link and for all you do.
Becky

@katemn , I found such great information at Bronchiectasis News Today. I printed a lot of articles about our disease to give to family and friends. I saw an article at the bottom about a doctors view of chronic illness , its a must read for everyone she has a link to her blog about all chronic diseases. Thanks for advocating for us and for doing all you do.
Becky

<br><br><br><br><br><br><br><br>Hi, I must have missed this, do you have the link please, I would like to read through it. I have my appt tomorrow AM. Thanks! He has 33 years of experience<br> with infectious lung disease they say so I have some hopes for this being a real doctor<br>J I will advise if he proves worthy of recommendation. I appreciate everyone being here for me,<br> it is nice to not feel alone in this.<br> <br><br><br>

W! Hope you use all the great information you find to educate your docs...who don't stay up to date like they would have us believe...

@chinasmom, Thank you Becky for you kind words! I agree with you .. I have REALLY learned a lot in that newsletter about our shared disease! Truthfully because in the beginning I was SO focused on getting healthier with my MAC I didn't even realize how serious the Bronchiectasis was .. hmmm! So I am really glad for that resource! Hugs to you! Katherine

@ijustdontbreathewell, , 'do you have the link please, I would like to read through it" you did not use an @ so not sure what link you are referring to? Let us know and we will help you. Katherine

Thanks for the Info!