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Any tips to help recovery for a COVID Long-Hauler?
Post-COVID Recovery & COVID-19 | Last Active: Dec 26, 2022 | Replies (115)Comment receiving replies
Your story is exactly like my story, only I am a long-hauler from Mono, which I contracted in October, 2019. I have not been well since, and no doctors have any suggestions or help for me. I can no longer work or live a normal life. I have terrible headaches, dizziness, nausea, extreme fatigue, and I lost 15 pounds (not good in my case.) Many days I lay in bed not really alive and not quite dead. No one really believes I'm sick because I look normal most days. I understand perfectly what you are saying, but doctors also don't seem to want to connect the dots between COVID long-haulers and other virus long-haulers. We ALL need help, and some have been suffering for years and decades. I am sick of being told that if I just had a positive attitude I would get well. That is such nonsense. This is a real condition that needs much more attention and research. There are probably millions of us suffering and yet we are ignored or pushed aside or worse - ridiculed. It's isolating and heart breaking. 21 months and counting.....
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To all the long-haulers, we are an exclusive bunch...at least! Here is a new dilemma for me! Any good detectives out there that may solve the "mystery?" Both husband and myself came down with Covid in March 2020, just as I was finishing radiation treatment for throat cancer. After getting both vaccinations in March 2021, I contracted Covid for the second time April 2021, and was hospitalized overnight. I am still experiencing Shortness-of-Breath (SOB), Fatigue, and a "new" one--Paralyzed Vocal Cords. Here is the so-called mystery: Yes, radiation causes all kinds of problems to vocal-cords, throat parts, etc., yet my vocal cords were not paralyzed until the second Covid infection. I never knew Covid caused this condition, but guess what? It DOES cause paralysis of Vocal Cords. Who knew? This Wednesday, I am due for a tracheotomy due to difficulty breathing. Apparently, My vocal cords are frozen bilaterally, which means there is just a small opening for air to get in. The doctor can perform a "Cordotomy," which is basically chopping off a section of the vocal cords/cord, to make a larger opening. The voice will be negatively affected, and it may not work well enough to account for anything, whereas I would still need a trach to breathe well. If the condition is caused by the Covid virus, there is a chance the condition may correct itself in time. This is the situation! I just wish there was a method the doctors could use to know for sure exactly what caused the paralysis. Thank-you, for listening. I hope all the Long-Haulers, become Long-Term Over-Takers.