Becky, Volunteer Mentor | @becsbuddy | Jun 16, 2021
Hi, @sub12 Welcome to Connect. We’re an online groups which helps people thru their medical journeys with experiences from our own journeys. You mentioned 3 digestive conditions, do you have all 3? The ‘Itis’ at the end of the words usually means an inflammation. If that’s the case, you want to stay away from spicy foods and alcohol. I entered the link for a pancreatitis diet. See if it has good information
Discussions | Digestive Health | Mayo Clinic Connect. You may also want to follow this group on digestive health https://www.healthline.com/health/pancreatitis-diet
You posted your question in the Autoimmune group. Do you have an autoimmune disease? Tell us a bit more about yourself.
Hi Becky, thank you for replying? i've been to different GI doctors but not giving me any full diagnosis , I only google the blood tests that was done per request of GI doctor, so I google the interpretation of the result and possibly it's a type of autoimmune as well based on info at Mayo website, high IGA and IGG subclass 4. It's like a long wait to get an appointment with my GI doctor where I live. trying to survive can't eat much.I alos check out the Digestive health group and I also posted there. I'm just hoping to find answers on either group since the medical issues are also related to auto immune...
Hi Becky, thank you for replying? i've been to different GI doctors but not giving me any full diagnosis , I only google the blood tests that was done per request of GI doctor, so I google the interpretation of the result and possibly it's a type of autoimmune as well based on info at Mayo website, high IGA and IGG subclass 4. It's like a long wait to get an appointment with my GI doctor where I live. trying to survive can't eat much.I alos check out the Digestive health group and I also posted there. I'm just hoping to find answers on either group since the medical issues are also related to auto immune...
@sub12. If it’s an autoimmune disease, I can take a long time to diagnose, unfortunately. My symptoms all started out as GI also but I was finally diagnosed with brain lesions. I went to a university medical center and have gotten great care. You might also think of going to a large medical center. And start keeping a journal of your symptoms, what’s happening with your GI tract, everything you can think of. It’s best to be totally prepared when you actually get to see a doctor.
@sub12. If it’s an autoimmune disease, I can take a long time to diagnose, unfortunately. My symptoms all started out as GI also but I was finally diagnosed with brain lesions. I went to a university medical center and have gotten great care. You might also think of going to a large medical center. And start keeping a journal of your symptoms, what’s happening with your GI tract, everything you can think of. It’s best to be totally prepared when you actually get to see a doctor.
You're right. I was told by someone that autoimmune diseases usually takes years before they diagnose it unless the doctor is keen and more dedicated to each patients he/she sees unfortunately the doctors from where I live are always in a rush and not really looking on their patients charts and take time to study your case until he/she sees you on that day. We only have 1 university here in Nevada and most doctors are only looking at what they are specialize with rather than looking at it in an integrative approach knowing that our organs and body systems affect one from the other just like Pancreas and gallbladder or stomach or duodenum things like those or nerves that is connected to GI motility. Most of the time doctors I consulted with don't like to be asked with questions which I have experienced with so many doctors I've seen that is why I have no choice but to rely on Google to search for answers but I usually get infos from reliable sources like NIH or Mayo, John Hopkins, Mount Sinai, UCLA, UChicago Medicine, Michigan University or other university medical centers websites that I can get info from. I have been journaling everything since my illnesses started from the very beginning but the doctors I've seen don't even care to look at it anyways. I think the only doctors who do what you said are those who are in a reputable University Medical Centers and research facilities type of Hospital like those that I've mentioned. Right now I have issues with my lungs and heart, upon googling I stumbled an Australian research that the Pulmonary-Intestinal problems are related due to its similar mucosal lining and because of its similarities the symptoms and health concerns can co-exist at the same time kind of like the cystic fibrosis from what I understand. I'm trying to find doctors that will really have an intensive experience but it's hard to find it here. I even trying to find medical doctors but practices functional medicine at the same time because they look at the entire functional side of our medical illnesses rather than just the medical concerns but it's hard to find it as well. My financial capabilities hinders my way to go out of State and I don't have any support group with me nor friends who can help me go to other states to seek medical help. My medical illnesses have affected my personal life. I wish I can just talk to you over the phone because right now I feel I needed a friend who can relate with me. Thank you for taking your time to read my long response, hope I did not tire you or bore you from reading it. Have a wonderful days ahead.
You're right. I was told by someone that autoimmune diseases usually takes years before they diagnose it unless the doctor is keen and more dedicated to each patients he/she sees unfortunately the doctors from where I live are always in a rush and not really looking on their patients charts and take time to study your case until he/she sees you on that day. We only have 1 university here in Nevada and most doctors are only looking at what they are specialize with rather than looking at it in an integrative approach knowing that our organs and body systems affect one from the other just like Pancreas and gallbladder or stomach or duodenum things like those or nerves that is connected to GI motility. Most of the time doctors I consulted with don't like to be asked with questions which I have experienced with so many doctors I've seen that is why I have no choice but to rely on Google to search for answers but I usually get infos from reliable sources like NIH or Mayo, John Hopkins, Mount Sinai, UCLA, UChicago Medicine, Michigan University or other university medical centers websites that I can get info from. I have been journaling everything since my illnesses started from the very beginning but the doctors I've seen don't even care to look at it anyways. I think the only doctors who do what you said are those who are in a reputable University Medical Centers and research facilities type of Hospital like those that I've mentioned. Right now I have issues with my lungs and heart, upon googling I stumbled an Australian research that the Pulmonary-Intestinal problems are related due to its similar mucosal lining and because of its similarities the symptoms and health concerns can co-exist at the same time kind of like the cystic fibrosis from what I understand. I'm trying to find doctors that will really have an intensive experience but it's hard to find it here. I even trying to find medical doctors but practices functional medicine at the same time because they look at the entire functional side of our medical illnesses rather than just the medical concerns but it's hard to find it as well. My financial capabilities hinders my way to go out of State and I don't have any support group with me nor friends who can help me go to other states to seek medical help. My medical illnesses have affected my personal life. I wish I can just talk to you over the phone because right now I feel I needed a friend who can relate with me. Thank you for taking your time to read my long response, hope I did not tire you or bore you from reading it. Have a wonderful days ahead.
You're right. I was told by someone that autoimmune diseases usually takes years before they diagnose it unless the doctor is keen and more dedicated to each patients he/she sees unfortunately the doctors from where I live are always in a rush and not really looking on their patients charts and take time to study your case until he/she sees you on that day. We only have 1 university here in Nevada and most doctors are only looking at what they are specialize with rather than looking at it in an integrative approach knowing that our organs and body systems affect one from the other just like Pancreas and gallbladder or stomach or duodenum things like those or nerves that is connected to GI motility. Most of the time doctors I consulted with don't like to be asked with questions which I have experienced with so many doctors I've seen that is why I have no choice but to rely on Google to search for answers but I usually get infos from reliable sources like NIH or Mayo, John Hopkins, Mount Sinai, UCLA, UChicago Medicine, Michigan University or other university medical centers websites that I can get info from. I have been journaling everything since my illnesses started from the very beginning but the doctors I've seen don't even care to look at it anyways. I think the only doctors who do what you said are those who are in a reputable University Medical Centers and research facilities type of Hospital like those that I've mentioned. Right now I have issues with my lungs and heart, upon googling I stumbled an Australian research that the Pulmonary-Intestinal problems are related due to its similar mucosal lining and because of its similarities the symptoms and health concerns can co-exist at the same time kind of like the cystic fibrosis from what I understand. I'm trying to find doctors that will really have an intensive experience but it's hard to find it here. I even trying to find medical doctors but practices functional medicine at the same time because they look at the entire functional side of our medical illnesses rather than just the medical concerns but it's hard to find it as well. My financial capabilities hinders my way to go out of State and I don't have any support group with me nor friends who can help me go to other states to seek medical help. My medical illnesses have affected my personal life. I wish I can just talk to you over the phone because right now I feel I needed a friend who can relate with me. Thank you for taking your time to read my long response, hope I did not tire you or bore you from reading it. Have a wonderful days ahead.
@sub12 Hello there. My heart aches for you as you try on your own to find help with your conditions. Can you connect with your local Hospital Dietician by phone? I live in a fairly small community on Vancouver Island where it's tough to access specialists or university facilities. However, when I was hospitalized recently after a bad fall, the nurses put two and two together and realized I was having great difficulty with food. My meal trays were going back, barely touched, because there was so much I couldn't eat due to IBD and OLP issues.
(painful gut/painful mouth). The hospital dietician contacted me by phone while I was in the hospital and followed up by sending a six-page dietary directive to the seniors' residence where I live, after also directly contacting the Head Chef here. Although my residence food is excellent, I'd been unable to eat properly or nutriciously for a very long time because of my two painful conditions. Now, the Chef adheres to my new dietary restrictions and things are improving for me. The Dietician has kept up contact with me by phone. Please give this a try!
And be assured you have friends at Mayo Clinic Connect.
Hi everyone! I'm new to this group and hoping to find answers what to eat living with different GI conditions. It's hard to live not knowing what to eat, when to eat and how to eat it. Been battling this for years now and could not go anywhere without fear of food because the foods being prepared in menu everything is "foods to avoid". I'm so afraid to eat food because I don't know how my GI will react and I'm loosing weight in process affecting my health. I just eat baby food puree food whenever I can or I just boil in water what I can eat and place in an osterizer/blender. sometimes it still gives me bad reaction and intestinal discomfort or sever bloating, gas or pain or cramps.
You're right. I was told by someone that autoimmune diseases usually takes years before they diagnose it unless the doctor is keen and more dedicated to each patients he/she sees unfortunately the doctors from where I live are always in a rush and not really looking on their patients charts and take time to study your case until he/she sees you on that day. We only have 1 university here in Nevada and most doctors are only looking at what they are specialize with rather than looking at it in an integrative approach knowing that our organs and body systems affect one from the other just like Pancreas and gallbladder or stomach or duodenum things like those or nerves that is connected to GI motility. Most of the time doctors I consulted with don't like to be asked with questions which I have experienced with so many doctors I've seen that is why I have no choice but to rely on Google to search for answers but I usually get infos from reliable sources like NIH or Mayo, John Hopkins, Mount Sinai, UCLA, UChicago Medicine, Michigan University or other university medical centers websites that I can get info from. I have been journaling everything since my illnesses started from the very beginning but the doctors I've seen don't even care to look at it anyways. I think the only doctors who do what you said are those who are in a reputable University Medical Centers and research facilities type of Hospital like those that I've mentioned. Right now I have issues with my lungs and heart, upon googling I stumbled an Australian research that the Pulmonary-Intestinal problems are related due to its similar mucosal lining and because of its similarities the symptoms and health concerns can co-exist at the same time kind of like the cystic fibrosis from what I understand. I'm trying to find doctors that will really have an intensive experience but it's hard to find it here. I even trying to find medical doctors but practices functional medicine at the same time because they look at the entire functional side of our medical illnesses rather than just the medical concerns but it's hard to find it as well. My financial capabilities hinders my way to go out of State and I don't have any support group with me nor friends who can help me go to other states to seek medical help. My medical illnesses have affected my personal life. I wish I can just talk to you over the phone because right now I feel I needed a friend who can relate with me. Thank you for taking your time to read my long response, hope I did not tire you or bore you from reading it. Have a wonderful days ahead.
Sub12, I add my welcome. I've added your question to the Digestive Health group as well as the Autoimmune Diseases group. I think members like @astaingegerdm@stormchild74@cim37343@oakbourne and @ltssjs might have tips to offer about diet and more when dealing with Duodenitis, Gastritis and Pancreatitis.
Sub12, what foods don't work for you? Which ones are best?
Sub12, I add my welcome. I've added your question to the Digestive Health group as well as the Autoimmune Diseases group. I think members like @astaingegerdm@stormchild74@cim37343@oakbourne and @ltssjs might have tips to offer about diet and more when dealing with Duodenitis, Gastritis and Pancreatitis.
Sub12, what foods don't work for you? Which ones are best?
Hi @sub12 !
It’s a shame it is so hard to find a doctor that will take the time to listen and analyze.
I have experienced all your problems on and off. Fatty foods are not good. In the stomach it takes longer for fatty foods to digest- more acid is produced. Pancreas does not like fatty foods either. Has sent me to ER. Avoid alcohol and spicy foods. Smaller meals are better.
I usually feel best with simple, high quality foods: fish, Greek youghurt, cottage cheese, soups, rice.
You're right. I was told by someone that autoimmune diseases usually takes years before they diagnose it unless the doctor is keen and more dedicated to each patients he/she sees unfortunately the doctors from where I live are always in a rush and not really looking on their patients charts and take time to study your case until he/she sees you on that day. We only have 1 university here in Nevada and most doctors are only looking at what they are specialize with rather than looking at it in an integrative approach knowing that our organs and body systems affect one from the other just like Pancreas and gallbladder or stomach or duodenum things like those or nerves that is connected to GI motility. Most of the time doctors I consulted with don't like to be asked with questions which I have experienced with so many doctors I've seen that is why I have no choice but to rely on Google to search for answers but I usually get infos from reliable sources like NIH or Mayo, John Hopkins, Mount Sinai, UCLA, UChicago Medicine, Michigan University or other university medical centers websites that I can get info from. I have been journaling everything since my illnesses started from the very beginning but the doctors I've seen don't even care to look at it anyways. I think the only doctors who do what you said are those who are in a reputable University Medical Centers and research facilities type of Hospital like those that I've mentioned. Right now I have issues with my lungs and heart, upon googling I stumbled an Australian research that the Pulmonary-Intestinal problems are related due to its similar mucosal lining and because of its similarities the symptoms and health concerns can co-exist at the same time kind of like the cystic fibrosis from what I understand. I'm trying to find doctors that will really have an intensive experience but it's hard to find it here. I even trying to find medical doctors but practices functional medicine at the same time because they look at the entire functional side of our medical illnesses rather than just the medical concerns but it's hard to find it as well. My financial capabilities hinders my way to go out of State and I don't have any support group with me nor friends who can help me go to other states to seek medical help. My medical illnesses have affected my personal life. I wish I can just talk to you over the phone because right now I feel I needed a friend who can relate with me. Thank you for taking your time to read my long response, hope I did not tire you or bore you from reading it. Have a wonderful days ahead.
@sub12 Oh, my. I think you may want to do a little less intensive research and put a little more trust in physicians. Can you start with your GP or gastroenterologist. Tell her that you really need help and then listen. And summarize your journal into the 1-2 problems/symptoms that most affect your life. These should be the focus of your appointment. Don’t try to know it all. As lay persons, we only understand about 1/4 of medical writing.
Will you try this and let me know how it goes?
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Hi, @sub12 Welcome to Connect. We’re an online groups which helps people thru their medical journeys with experiences from our own journeys. You mentioned 3 digestive conditions, do you have all 3? The ‘Itis’ at the end of the words usually means an inflammation. If that’s the case, you want to stay away from spicy foods and alcohol. I entered the link for a pancreatitis diet. See if it has good information
Discussions | Digestive Health | Mayo Clinic Connect. You may also want to follow this group on digestive health
https://www.healthline.com/health/pancreatitis-diet
You posted your question in the Autoimmune group. Do you have an autoimmune disease? Tell us a bit more about yourself.
-
Like -
Helpful -
Hug
2 ReactionsHi Becky, thank you for replying? i've been to different GI doctors but not giving me any full diagnosis , I only google the blood tests that was done per request of GI doctor, so I google the interpretation of the result and possibly it's a type of autoimmune as well based on info at Mayo website, high IGA and IGG subclass 4. It's like a long wait to get an appointment with my GI doctor where I live. trying to survive can't eat much.I alos check out the Digestive health group and I also posted there. I'm just hoping to find answers on either group since the medical issues are also related to auto immune...
-
Like -
Helpful -
Hug
3 Reactions@sub12. If it’s an autoimmune disease, I can take a long time to diagnose, unfortunately. My symptoms all started out as GI also but I was finally diagnosed with brain lesions. I went to a university medical center and have gotten great care. You might also think of going to a large medical center. And start keeping a journal of your symptoms, what’s happening with your GI tract, everything you can think of. It’s best to be totally prepared when you actually get to see a doctor.
-
Like -
Helpful -
Hug
1 ReactionYou're right. I was told by someone that autoimmune diseases usually takes years before they diagnose it unless the doctor is keen and more dedicated to each patients he/she sees unfortunately the doctors from where I live are always in a rush and not really looking on their patients charts and take time to study your case until he/she sees you on that day. We only have 1 university here in Nevada and most doctors are only looking at what they are specialize with rather than looking at it in an integrative approach knowing that our organs and body systems affect one from the other just like Pancreas and gallbladder or stomach or duodenum things like those or nerves that is connected to GI motility. Most of the time doctors I consulted with don't like to be asked with questions which I have experienced with so many doctors I've seen that is why I have no choice but to rely on Google to search for answers but I usually get infos from reliable sources like NIH or Mayo, John Hopkins, Mount Sinai, UCLA, UChicago Medicine, Michigan University or other university medical centers websites that I can get info from. I have been journaling everything since my illnesses started from the very beginning but the doctors I've seen don't even care to look at it anyways. I think the only doctors who do what you said are those who are in a reputable University Medical Centers and research facilities type of Hospital like those that I've mentioned. Right now I have issues with my lungs and heart, upon googling I stumbled an Australian research that the Pulmonary-Intestinal problems are related due to its similar mucosal lining and because of its similarities the symptoms and health concerns can co-exist at the same time kind of like the cystic fibrosis from what I understand. I'm trying to find doctors that will really have an intensive experience but it's hard to find it here. I even trying to find medical doctors but practices functional medicine at the same time because they look at the entire functional side of our medical illnesses rather than just the medical concerns but it's hard to find it as well. My financial capabilities hinders my way to go out of State and I don't have any support group with me nor friends who can help me go to other states to seek medical help. My medical illnesses have affected my personal life. I wish I can just talk to you over the phone because right now I feel I needed a friend who can relate with me. Thank you for taking your time to read my long response, hope I did not tire you or bore you from reading it. Have a wonderful days ahead.
-
Like -
Helpful -
Hug
2 ReactionsI will be praying for you 💖😊🙏
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Helpful -
Hug
1 Reaction@sub12 Hello there. My heart aches for you as you try on your own to find help with your conditions. Can you connect with your local Hospital Dietician by phone? I live in a fairly small community on Vancouver Island where it's tough to access specialists or university facilities. However, when I was hospitalized recently after a bad fall, the nurses put two and two together and realized I was having great difficulty with food. My meal trays were going back, barely touched, because there was so much I couldn't eat due to IBD and OLP issues.
(painful gut/painful mouth). The hospital dietician contacted me by phone while I was in the hospital and followed up by sending a six-page dietary directive to the seniors' residence where I live, after also directly contacting the Head Chef here. Although my residence food is excellent, I'd been unable to eat properly or nutriciously for a very long time because of my two painful conditions. Now, the Chef adheres to my new dietary restrictions and things are improving for me. The Dietician has kept up contact with me by phone. Please give this a try!
And be assured you have friends at Mayo Clinic Connect.
-
Like -
Helpful -
Hug
2 ReactionsHi everyone! I'm new to this group and hoping to find answers what to eat living with different GI conditions. It's hard to live not knowing what to eat, when to eat and how to eat it. Been battling this for years now and could not go anywhere without fear of food because the foods being prepared in menu everything is "foods to avoid". I'm so afraid to eat food because I don't know how my GI will react and I'm loosing weight in process affecting my health. I just eat baby food puree food whenever I can or I just boil in water what I can eat and place in an osterizer/blender. sometimes it still gives me bad reaction and intestinal discomfort or sever bloating, gas or pain or cramps.
Sub12, I add my welcome. I've added your question to the Digestive Health group as well as the Autoimmune Diseases group. I think members like @astaingegerdm @stormchild74 @cim37343 @oakbourne and @ltssjs might have tips to offer about diet and more when dealing with Duodenitis, Gastritis and Pancreatitis.
Sub12, what foods don't work for you? Which ones are best?
-
Like -
Helpful -
Hug
2 ReactionsHi @sub12 !
It’s a shame it is so hard to find a doctor that will take the time to listen and analyze.
I have experienced all your problems on and off. Fatty foods are not good. In the stomach it takes longer for fatty foods to digest- more acid is produced. Pancreas does not like fatty foods either. Has sent me to ER. Avoid alcohol and spicy foods. Smaller meals are better.
I usually feel best with simple, high quality foods: fish, Greek youghurt, cottage cheese, soups, rice.
-
Like -
Helpful -
Hug
5 Reactions@sub12 Oh, my. I think you may want to do a little less intensive research and put a little more trust in physicians. Can you start with your GP or gastroenterologist. Tell her that you really need help and then listen. And summarize your journal into the 1-2 problems/symptoms that most affect your life. These should be the focus of your appointment. Don’t try to know it all. As lay persons, we only understand about 1/4 of medical writing.
Will you try this and let me know how it goes?
-
Like -
Helpful -
Hug
3 Reactions