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DiscussionAny tips to help recovery for a COVID Long-Hauler?
Post-COVID Recovery & COVID-19 | Last Active: Dec 26, 2022 | Replies (115)Comment receiving replies
Replies to "I'm a long-hauler myself, and it's been the hardest thing I've ever gone through, -and I..."
Hello @lauriekh and welcome to Mayo Clinic Connect and the COVID-19 Group. Thank you for joining and sharing your experience with COVID and your long haul symptoms.
I am so glad to hear that you are seeking care at Mayo next week. Will you come back regularly to this discussion and share updates as you walk through your journey and care?
Your story is exactly like my story, only I am a long-hauler from Mono, which I contracted in October, 2019. I have not been well since, and no doctors have any suggestions or help for me. I can no longer work or live a normal life. I have terrible headaches, dizziness, nausea, extreme fatigue, and I lost 15 pounds (not good in my case.) Many days I lay in bed not really alive and not quite dead. No one really believes I'm sick because I look normal most days. I understand perfectly what you are saying, but doctors also don't seem to want to connect the dots between COVID long-haulers and other virus long-haulers. We ALL need help, and some have been suffering for years and decades. I am sick of being told that if I just had a positive attitude I would get well. That is such nonsense. This is a real condition that needs much more attention and research. There are probably millions of us suffering and yet we are ignored or pushed aside or worse - ridiculed. It's isolating and heart breaking. 21 months and counting.....
Dear @lauriekh I went through radiation that ended in March 2020. Husband and both contracted Covid. I broke ribs coughing for months. Got vaccinated with second one March 11, 2021. Came down with Covid AGAIN April 6, and was hospitalized. SOB, no energy, sore throat, feel like you are dying...yes, I totally understand what you say! I too am a long-hauler.