← Return to Sjogren's, Hashimoto's and Thyroid Dysfunction: Got questions

Discussion
Comment receiving replies
@kohlgryl079

You are not alone. I was allergic, to me, to synthroid. I now take Armour thyroid. Hair grew back, welts and hive are gone. This is my personal experience, not medical advice.

Jump to this post


Replies to "You are not alone. I was allergic, to me, to synthroid. I now take Armour thyroid...."

Hi
I suffered from severe hives from 19 to early 40s when i tested for hashimotos. As soon as i started on synthroid the hives stopped. There seems to be a connection go hives and hashimotos. My niece had the same.
My Dr thought 10 was a good TSH. HE bever took my issues seriously until my TSH got clise to 300!
Finally switched to Dr at Mass General who straightened things out.
He added cytomel which helped brain function. Hd finally said i could let my local OCP tKe over. That was a mistake because where i lived noone knew how to use cytomel. I became sooo sick. drs kept switching dosages. I was falling snd thought i had dinentia. I was unable to fall asleep. It took 6 hrs each night. After yrs of this i went back to MGH. they were shocked and said i was lucky not to have had a stroke.
A yr before i got BACK to THE endo at MGH i was diagnosed with a mysterious form of CKD. I BEGAN TREATMENT WITH PREFNISONE AND CELLCEPT. IT WORKED. WENT INTO REMISSION. 2 yrs in i was not in remission and was diagnosed with ANCA vasculitis.
Now i have lupus-like CKD. AND ANCA-like condition. And have developed mysterious facial skin eruptions. Nothing seems to be working on skin but am in rituxan and its working for ANCA And CKD The downside IS noone knows how long it us safe to be on it.

I have an excellent medical team now but i worry what awaits me at each return to a dr.

I do hope u have vetter luck than i.