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Member Neuropathy Journey Stories: What's Yours?
Neuropathy | Last Active: Nov 23 5:30pm | Replies (573)Comment receiving replies
Thank you for responding. I have had pain in my lower legs for a couple of years. I thought it might be from my vertebrae fractures. I told my doctor and they tested me and showed neuropathy. Said it probably is from my spine, not much you can do.now I have extreme pain in my feet and lower legs. My fractures do not hurt when laying down. The Neuropathy is just terrible. I take Tramadol 50 mg. It seems to help. The pain wakes me up off and on all night. I hope I made some sense. I have a hard time talking about this. So thankful for this site and your interest.
Susan
Replies to "Thank you for responding. I have had pain in my lower legs for a couple of..."
Greetings @susantg on this beautiful summer day. It is sad to hear about the intense pain that you have endured for way too long. When you say the tests showed neuropathy, can you tell me what kind of tests? Was your only symptom pain? Was there any discussion about the different types of neuropathy and which type the tests revealed? I have small fiber neuropathy (SFN) and it was discovered with a skin punch biopsy.
Four years ago I had what I call screaming pain in my feet and lower legs. It always started about 5:30 in the morning and was gone in a couple of hours. Now I have ice-cold feet when I lie down to sleep at night. The point I am trying to make is that there are many types of neuropathy that take many forms as time passes. Or at least this has been my experience.
I also have a diagnosis of CMPS, Chronic Myofascial Pain Syndrome. As you probably know, fascia is the material in our bodies that connects all of the muscles, ligaments, and tissues. When the fascia is restricted in any way, the messages get confused and pain is the result.
And now, why am I telling you this. It is because John Bishop (@johnbishop) mentioned MFR, Myofascial Release therapy as a possibly helpful treatment for you. He also gave you the Connect link. I would like to introduce you to @jenniferhunter. Not only does she know a lot about MFR......she also has some spine history that might be helpful.
I will leave you with this revealing statement. Without MFR, I would not be here. I know that without a cure, the condition is progressive. And for me, without two sessions a week of MFR, my days would not ring with joy at least once or twice.
May you be free of suffering and the causes of suffering.
Chris
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Hi Susan @susantg, It can be difficult to talk about if talking with someone that doesn't understand how painful neuropathy can be. Have you tried any complementary or integrative therapies to see if you can get some additional relief from the neuropathy pain. @artscaping may have some additional suggestions for you that may help. One that comes to mind that she uses is Myofascial Release Therapy (MFR). There is another discussion on that here -- Myofascial Release Therapy (MFR) for treating compression and pain: https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
The Foundation for Peripheral Neuropathy has a list of Complementary + Integrative Therapies here: https://www.foundationforpn.org/living-well/integrative-therapies/
Reading and learning as much as you can about neuropathy and your type of neuropathy can help you be a better advocate for your health and hopefully find something that is your magic pill to make it all go away.