Arthritis & Neuropathy

Posted by ttl1520 @ttl1520, Jun 14, 2021

Hi, my name is Ted. I have arthritis in my right knee & left foot. Some starting in my right foot. I have numbness in my toes both feet. I had Muscle & large nerve tests in my legs. MRI on lower back fairly normal Normal. I have had extensive blood work. Was low on zinc. My shins hurt most of the time and my thighs hurt when active. The neurologist doesn't want to do small nerve test, because of possible permanent nerve numbness. I have leg fatigue after moderate use. This is more of a problem than the pain. Wondering what to do next? Can inflammation from arthritis cause easy fatigue?

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Hi Ted @ttl1520, I have degenerative arthritis in my left knee and have had my right knee replaced two years ago due to the arthritis. I also have small fiber peripheral neuropathy in my feet plus I have to wear compression socks because of lymphedema swelling in the legs. I try to exercise daily because it really helps mentally and physically but I don't over do it until I'm tired.

Here's some information on your question -- Excerpt from link below -- "Inflammation, pain, inactivity and lifestyle factors can cause extreme tiredness when living with arthritis. Everyone gets worn out from time to time." -- Causes of Fatigue in Arthritis - Arthritis Foundation: https://www.arthritis.org/health-wellness/healthy-living/managing-pain/fatigue-sleep/causes-of-fatigue-in-arthritis

My neurologist didn't do the skin punch biopsy either but I was OK with that because the EMG and physical exam were enough to determine my diagnosis. Here's more how and why info for the test.
Diagnosing Small Fiber Neuropathy Through the Use of Skin Biopsy: https://practicalneurology.com/articles/2009-oct/PN1009_06-php

Did your neurologist diagnose you with neuropathy?

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Hi Ted - I have been living with arthritis for more years than I can remember, and can assure you that it definitely can cause fatigue. My Mom also had it for over 40 years, and was very wise in helping me learn to live with it. The articles John posted are very helpful too.

Here are some things I have learned along the way -
Too much is not good. That is too much activity, and too much inactivity. Even when I feel like I'm "made of lead" I try to get up and move every hour - even just walk out and around the yard.

Eat well, and drink enough water. If you are not a cook, fresh vegetables and fruit, cheese and dairy for calcium are easy. I find frozen "healthy meals" that are quick to do for days when we don't want to cook, or make veggie omelets or "loaded" baked potatoes/sweet potatoes for dinner.

When you nap or rest, lie down, don't just fall asleep in your recliner. This promotes better rest, and takes the stress off your body. And set an alarm - learn what's best for you 20, 30, 40 minutes - no more than one hour.

Exercise & work - walk, bike, swim, stretch - the more you can do, the better you'll feel. Work can be your exercise too, but don't overdo - rest periodically, quit before you are exhausted. This improves muscle tone, circulation, and attitude.

Admit when you can no longer do things, and get help - you did for others for years, now it's time to let others do for you.

Don't be embarrassed to use a walking aid - cane, hiking poles, walker - for safety and security. I got over my reluctance while in my 50's and waiting for hip replacement.

Attitude is everything - stay around positive people, stay away from negative thoughts, people, news... Surround yourself with what makes you happy - pictures, flowers, music, books.

Sue

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@johnbishop

Hi Ted @ttl1520, I have degenerative arthritis in my left knee and have had my right knee replaced two years ago due to the arthritis. I also have small fiber peripheral neuropathy in my feet plus I have to wear compression socks because of lymphedema swelling in the legs. I try to exercise daily because it really helps mentally and physically but I don't over do it until I'm tired.

Here's some information on your question -- Excerpt from link below -- "Inflammation, pain, inactivity and lifestyle factors can cause extreme tiredness when living with arthritis. Everyone gets worn out from time to time." -- Causes of Fatigue in Arthritis - Arthritis Foundation: https://www.arthritis.org/health-wellness/healthy-living/managing-pain/fatigue-sleep/causes-of-fatigue-in-arthritis

My neurologist didn't do the skin punch biopsy either but I was OK with that because the EMG and physical exam were enough to determine my diagnosis. Here's more how and why info for the test.
Diagnosing Small Fiber Neuropathy Through the Use of Skin Biopsy: https://practicalneurology.com/articles/2009-oct/PN1009_06-php

Did your neurologist diagnose you with neuropathy?

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Hi John. Thanks for replying and the websites. My neurologist did not diagnose neuropathy. Muscle and large nerve tests were negative. Last summer my foot started to hurt me. Almost all of a sudden. before I saw the neurologist. I went to see a local orthopedic clinic. They took x rays. Lots of arthritis in my left foot. Some of the bones are not attached anymore. Said I had it for about 30 years and was surprised, I was complaining now. Go figure that out. Some starting in my right foot. My knee started about 11 years ago. I have been managing the pain with Aleve, CBD cream & EMU oil cream. I didn't tire very easily. But in March, fatigue started to set in. My regular doctor tested the blood flowing my feet. Ok. Said may I had shin splints. I am due to go back to him for a wellness physical. See what happens. I have been wondering if maybe I had an asymptomatic Covid.

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@sueinmn

Hi Ted - I have been living with arthritis for more years than I can remember, and can assure you that it definitely can cause fatigue. My Mom also had it for over 40 years, and was very wise in helping me learn to live with it. The articles John posted are very helpful too.

Here are some things I have learned along the way -
Too much is not good. That is too much activity, and too much inactivity. Even when I feel like I'm "made of lead" I try to get up and move every hour - even just walk out and around the yard.

Eat well, and drink enough water. If you are not a cook, fresh vegetables and fruit, cheese and dairy for calcium are easy. I find frozen "healthy meals" that are quick to do for days when we don't want to cook, or make veggie omelets or "loaded" baked potatoes/sweet potatoes for dinner.

When you nap or rest, lie down, don't just fall asleep in your recliner. This promotes better rest, and takes the stress off your body. And set an alarm - learn what's best for you 20, 30, 40 minutes - no more than one hour.

Exercise & work - walk, bike, swim, stretch - the more you can do, the better you'll feel. Work can be your exercise too, but don't overdo - rest periodically, quit before you are exhausted. This improves muscle tone, circulation, and attitude.

Admit when you can no longer do things, and get help - you did for others for years, now it's time to let others do for you.

Don't be embarrassed to use a walking aid - cane, hiking poles, walker - for safety and security. I got over my reluctance while in my 50's and waiting for hip replacement.

Attitude is everything - stay around positive people, stay away from negative thoughts, people, news... Surround yourself with what makes you happy - pictures, flowers, music, books.

Sue

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Hi Sue. Thanks for responding. See my response to John. I don't need any walking aids as my balance is pretty good. My strength is pretty good, even when fatigued. If that makes any sense. The pain I can deal with. Some days recently, after some breakfast and take a shower, I feel almost completely exhausted. This started about three months ago. On better days when I cut the lawn, my thighs start to ache. Is this part of arthritis? Have to sit down and message then. Seem to return with new energy. Didn't have this problem last summer, although my arthritis pain is about the same. Ted

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@ttl1520

Hi Sue. Thanks for responding. See my response to John. I don't need any walking aids as my balance is pretty good. My strength is pretty good, even when fatigued. If that makes any sense. The pain I can deal with. Some days recently, after some breakfast and take a shower, I feel almost completely exhausted. This started about three months ago. On better days when I cut the lawn, my thighs start to ache. Is this part of arthritis? Have to sit down and message then. Seem to return with new energy. Didn't have this problem last summer, although my arthritis pain is about the same. Ted

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Hello Ted. I use a heat pack at night, take vitamins D3, K2, & 1600 mg of calcium tablets per day. Finally, I exercise all of my joints at least 4 times weekly by stretching first and adding 2 lb weights to my regimen. I use Jane Fonda Workouts (CD collection) which I ordered online for $53. The CDs have workout and stretches for older Americans, no matter what level of fitness level you are currently functioning on. Ask you Dr. first before attempting any new exercise regimen. Best.

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@lbroomayo1

Hello Ted. I use a heat pack at night, take vitamins D3, K2, & 1600 mg of calcium tablets per day. Finally, I exercise all of my joints at least 4 times weekly by stretching first and adding 2 lb weights to my regimen. I use Jane Fonda Workouts (CD collection) which I ordered online for $53. The CDs have workout and stretches for older Americans, no matter what level of fitness level you are currently functioning on. Ask you Dr. first before attempting any new exercise regimen. Best.

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Hello @lbroomayo1, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. Thank you for sharing your experience and some great suggestions.

Do you mind if I ask what you were searching for when you found Connect?

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@johnbishop

Hello @lbroomayo1, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. Thank you for sharing your experience and some great suggestions.

Do you mind if I ask what you were searching for when you found Connect?

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I'd just clicked the link in the daily email I get. But I have numbness in my toes like Ted does so the topic interested me. Thanks.

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@klhorn

I'd just clicked the link in the daily email I get. But I have numbness in my toes like Ted does so the topic interested me. Thanks.

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Again, I have to give praise to Jane Fonda Workouts. I started having numbness in my toes in my late 50's. I love wearing heels, so I revisited the exercises in her videos. She does a lot of tendon stretches in her workouts. I can still wear my favorite shoes after age 60. My circulation in my feet have greatly improved, no more numbness. Be sure to wear thick socks as much as possible and continually keep your feet warm. Best.

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@johnbishop

Hello @lbroomayo1, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. Thank you for sharing your experience and some great suggestions.

Do you mind if I ask what you were searching for when you found Connect?

Jump to this post

Yes. I watched a documentary on the history of the Mayo Clinic on Netflix two years ago. I was impressed with their story. I was looking for a renowned Clinic to assist me with medical evaluations. I currently use Emory for all of my preventative medical care. As the old saying goes, "You don't want to put all your eggs in one basket."

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@lbroomayo1

Again, I have to give praise to Jane Fonda Workouts. I started having numbness in my toes in my late 50's. I love wearing heels, so I revisited the exercises in her videos. She does a lot of tendon stretches in her workouts. I can still wear my favorite shoes after age 60. My circulation in my feet have greatly improved, no more numbness. Be sure to wear thick socks as much as possible and continually keep your feet warm. Best.

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@lbroomayo1 Good morning, Lynn. Wow.....the Jane Fonda Workouts. I remember that my father gave me her book when I turned 40 or 45. He thought I worked too hard and was concerned that I lived alone. I spent about 10 years flying around the country for a Canadian company, Systemhouse, LTD. We installed first-time computer systems in grocery stores, architectural firms, and manufacturing entities. At that time, folks were frightened about computers and afraid that system installations would eliminate jobs.

I just wanted them to cut their fingernails so they didn't tap dance on the keyboard.

May you have happiness today and the causes of happiness.
Chris

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