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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 7 12:50pm | Replies (2237)

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@tiredoftingling

I am just joining the group and it saddens me to see so many people that have gotten neuropathy after the vaccine. I have been post vaccine for almost 2 months and just went to the doctor last week. He said he has seen several cases like mine and prescribed Gabapentin but yet to take it because of the side effects. Has anyone take this drug and if so has it worked. I am having tingling and burning in my hands and feet and it is at it's worst during the night. Sometimes when I wake up it feels like a creepy crawling feeling all over my body. I regret getting the shot, but at this point there is nothing I can do about it. Feeling very depressed 🙁

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Replies to "I am just joining the group and it saddens me to see so many people that..."

I’m so sorry you are dealing with this. I had a reaction to my first Pfizer vaccine, burning hands, feet and legs to above my knees. So bad that I couldn’t bring myself to get the second shot. It has now been 10 weeks and in the last week my pain has started to lessen and I am hopeful it will continue to. I hope yours does too. I take gabapentin with no problems. What vaccine did you get?

Hello @tiredoftingling, Welcome to Connect. I'm really sorry to hear you have the neuropathy symptoms after receiving the COVID vaccine. If you have not already done it, I would recommend that you report your symptoms to the Vaccine Adverse Event Reporting System (VAERS) here https://vaers.hhs.gov/

I had small fiber peripheral neuropathy before getting both Pfizer vaccines but it did not make my symptoms worse. Gabapentin does have some side effects but is commonly prescribed for neuropathy pain. You may want to learn what others have shared about their neuropathy journey in the following discussion.

Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

Have you tried any alternatives to drugs to help with the tingling and burning in the feet and hands? You can find some different suggestions on the Foundation for Peripheral Neuropathy here -- https://www.foundationforpn.org/living-well/integrative-therapies/

Hello, there are a number of people on this discussion who have had neuropathy reactions to the vaccines. I’m sorry you have experienced these as well. I did too. I try to remember the importance of the vaccine, however, and above all remain positive.

I know the pain and discomfort of neuropathy is not easy. I do take Gabapentin. I try to limit it to late afternoon, evening. I only take 200-300 mgs. daily. It does help with the sharp, stabbing nerve pains I get and it relaxes me so that I can typically sleep through most nights. I personally have not found that I have any side effects from it.

There are many helpful posts on the Mayo Connects neuropathy discussion. I encourage you to read these as I’ve found that not everything is helpful for everyone. I take notes from the posts, research a lot, and discuss options with my neurologist.

I have sfn since May, two months after the maderna vaccine 2nd dose. I have hot and ice cold feet and legs but the symptoms got better with gabapentin but symptoms still exist. I take 600 mg at night which helps the symptoms and helps me sleep. I'm 75 and it gives me minor balance issues and some constipation but that's better than not sleeping due to the symptoms which are worse at night. Hope you find relief. Gabapentin is what is usually prescribed.

I have neuropathy in my lower legs and feet. I had it before my Pfizer two vaccines and I still have it, same rate. I took gabapentin two or three years ago for six weeks. Made no difference. After the second Pfizer vaccine after one week I had diarrhea for nine weeks