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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 2 days ago | Replies (6021)

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@suzanne2

@johnbishop after reading some of the material you suggested I am concluding on my own that my neuropathy is from Fibromyalgia. I was diagnosed with it, along with Chronic Fatigue syndrome, 30 years ago and confirmed again last July at Mayo. I have a video appointment scheduled with the Fibromyalgia department at Mayo in 2 weeks and am going to bring it up. No neurologist has told me the cause of my problems. I am prescribed 1900 mg of gabapentin which I despise due to side effects. I have tried to cut back but the need ends up being greater than the issues of side effects. Sometimes I feel like it is a vicious circle of having severe shooting pain off the gabapentin, or terribly dizzy on it.

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Replies to "@johnbishop after reading some of the material you suggested I am concluding on my own that..."

@suzanne2 - Here are some additional resources for Fibromyalgia that you may want to bookmark. You may want to check them out for alternatives to using gabapentin.

-- National Institute of Arthritis and Musculoskeletal and Skin Diseases: http://www.niams.nih.gov/hi/topics/fibromyalgia/fibrofs.htm
-- National Fibromyalgia Association: http://www.fmaware.org/
-- National Fibromyalgia and Chronic Pain Association: http://www.fmcpaware.org/
-- National Fibromyalgia Partnership, Inc.: http://www.fmpartnership.org/
-- The American Fibromyalgia Syndrome Association, Inc.: http://www.afsafund.org/

The Patient Revolution website has some note cards you can print out that helps you prepare for questions to ask at your upcoming video appointment - https://patientrevolution.org/visit-tools

Can you provide an update after your video appointment to let us know how it went?