Wed, Mar 15 at 2:14pm CDT
Hi there, im new to this groip. Last year i had a 3 month review for an upper left lobe cavitary lesion. Bronchospy couldn't reveal any information, the lesion isi5n difficult spot to get enough sample. Three months ago thr next CT scan revealed the size was the same but the wall thickness is a bit smaller than before. My next CT is soon and i want to be prepared with questions but dont know where to begin. I have RA and psoriatic arthritis, and also suffered a fall before all this started. Please let me know if you have any suggestions....i see the cardio/thoracic surgeon in a couple weeks and he said if not smaller they want to get me in surgery....thank you

, Thu, Mar 16 at 1:03pm CDT
Thank you everone so much. I see my rheumatologist tomorrow and ct scan scheduled on Tuesday. I had been participating in the MAC support group several months ago but a dying phone kept me off for a while. The info everyone has given me really helps.
I am a little concerned, still need a sputum test and did have a broncoscopy last summer but the surgeeon i was later refered to said he couldnt rule out cancer, but we will review it and make decision in April. What i dont understand is this all started at ladt year same time i developed a uti which caused sepsis as it went into bladder infection (more than 4 baterium found in labwork). It kind of sounds like i should have been given long term meds from what i see in the responses. Ive had severe weakness before and after the chest xray. The pulmonologist i saw who did my broncoscopy didnt know what to do so at least he moved me to this surgeon for another opinion. Being immunocompromised already has helped to confuse things, and im certain an open biopsy is not something ill decide lightly. Im off to review the links you offered Kate. Julie8888

Thu, Mar 23 at 2:22pm CDT
Thank you again Katherine. I will keep everyone updated about my April 4th visit with CARDIO/THORacic surgeon on April 4. It was difficult getting the ct scan, i wasnt feeling well from a hip/bursitis injection last Friday, where i had an allergy to it. I experienced extreme itching, cortisone flare, swelling along ankle and on top of right hand. Seems like ive gone down this journey with lung and increased inflammation, food allergies since i had several injections over a year ago. Its hard when so many things make it complicAted for doctors to diagnose and treat. Im picking up a short azithromyacin zpac today for new sinus infection. Im venting but know everyone understands.
Ill get the results tomorrow of ct scan and will definitely come here with the news. Is this thread in the mac group, i mzy have put it in wrong spot? Sincerely, jewel8888 julie

Posted by @jewel8888, 2 hours ago
I appreciate your checking on me!
I didn't know if our above posts could be moved to the MAC group or if i needed to start new thread
I go to Dr tomorrow, with report in hand. Its looking good with the lesion not increasing. It does say there is ground glass increasing bilaterally, likely from atelectasis and hypoventilation. Also that this is still of unknown origin....., neoplasric, infectious, inflammatory. Its hard trying to remember what to ask but i think with all I've learned from you and the group i will be ok. This surgeon is chief of the medical Univ. Of South Carolina.
Thank you. Again, i will make sure to share afterwards.
Julie
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@jewel8888 Julie, I am answering you on the Main MAC Forum page .. that means now if you just hit the Reply button from now on it will take you back to the Main MAC Forum page where you wanted to be in the first place. I can't move your previous posts .. but have tried to copy/paste so Members can see your history. I am sorry I did not take care of this sooner .. but I was out with a family situation .. but now all your posts will be here!

Julie, let us know how your appointment goes .. AND go back to https://connect.mayoclinic.org/discussion/mycobacterium-avium-complex-pulmonary-disease-macmai/?pg=33 and print out that "Questions to Ask Your Doctor" form that I gave you there .. change it as you need to .. give yourself spaces between the questions etc. That will give you some ideas of questions to ask! Good luck and keep us posted! Hugs! Katherine