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Autoimmune disease and thrombocytopenia

Autoimmune Diseases | Last Active: Jul 5, 2021 | Replies (74)

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@becsbuddy

@marymanning Of course you and your daughter are concerned. It’s a frightening situation and your daughter needs to have full confidence in the doctors. As a nurse on an oncology unit, we ran into this type of problem occasionally. There are several things that she can try.
1. She can explain how she feels to one of her nurses that she really likes and trusts and just pull them in to understand what she’s feeling and then hope that they will pass this on to the doctor a good nurse usually does.
2. You could help her make some posters of her questions just make them big enough to be seen and post them on the door to the hallway or over her bed just somewhere that they can be seen and just list what she’s feeling and she wants some answers.
3. You could also find out if there is a patient representative in the hospital. A patient representative is a go between the patient and the doctor. Her or his job is to side with the patient. They are very nice people and they’re able to talk to the doctors and explain how the patient feels so this is also good.
Will any of this help?

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Replies to "@marymanning Of course you and your daughter are concerned. It’s a frightening situation and your daughter..."

@becsbuddy Such great ideas, Becky. I'm sure that @marymanning will appreciate these thoughts from a nurse who knows how the hospital system works! Thanks.