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Autoimmune disease and thrombocytopenia
Autoimmune Diseases | Last Active: Jul 5, 2021 | Replies (74)Comment receiving replies
Yes, I will repost for tomorrow. Thank you for your kind words. She still has not spoken with any of her doctors since they sent her to the hospital for an EKG on Friday. She is so upset by their lack of concern. She needs their reassurance that this is going to be okay -- that Oliver will come through this okay -- and yet it seems like none of them want to take on that responsibility.
Replies to "Yes, I will repost for tomorrow. Thank you for your kind words. She still has not..."
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@marymanning Of course you and your daughter are concerned. It’s a frightening situation and your daughter needs to have full confidence in the doctors. As a nurse on an oncology unit, we ran into this type of problem occasionally. There are several things that she can try.
1. She can explain how she feels to one of her nurses that she really likes and trusts and just pull them in to understand what she’s feeling and then hope that they will pass this on to the doctor a good nurse usually does.
2. You could help her make some posters of her questions just make them big enough to be seen and post them on the door to the hallway or over her bed just somewhere that they can be seen and just list what she’s feeling and she wants some answers.
3. You could also find out if there is a patient representative in the hospital. A patient representative is a go between the patient and the doctor. Her or his job is to side with the patient. They are very nice people and they’re able to talk to the doctors and explain how the patient feels so this is also good.
Will any of this help?