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Recently Diagnosed with Small Fiber Neuropathy

Neuropathy | Last Active: Jun 13, 2021 | Replies (24)

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@athenalee

Thank you Toni for your kind words. I’ve done extensive research on what conflicts with Tacrolimus…unfortunately many natural supplements I’d like to take. I’m not sure if the ALA is helping, doesn’t seem to hurt me, so I’ll give it a little longer.

I have very high levels of B12 for reasons not yet clear, so don’t take any Vitamin Bs other than biotin to counteract hair loss due to Tac. And, I have low platelets, probably an autoimmune thing, so I read that I shouldn’t take Acetyl-L-carnitine. Curcumin seems to have promise, but studies show it interacts with Tac. Have you tried it?

I do take fish oil, and I eat a lot of chia seeds, walnuts, and other things high in Omegas. I’d be curious if you tried N-Acetyl cysteine…I wasn’t impressed with what I’ve read about it.

Like you I’m a firm believer in eating well, walking, and exercise. Someone said walk backwards some, so I’m doing that and stair exercises for the balls of my feet, along with other foot exercises. John says keeping his feet moisturized helps him, so I started doing that every day. I’m hoping to get more answers with my upcoming doctors visits.

Take care and let me know if you discover anything helpful! Athena

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Replies to "Thank you Toni for your kind words. I’ve done extensive research on what conflicts with Tacrolimus…unfortunately..."

You’re welcome! Your persistence with experiments and research will lead you to more answers for yourself and better health. They have for me. I never gave up. In fact, I know more now about my health issues. I believe high B12 blood levels can be associated with liver disease. I am sure you will figure out the culprit with your situation. I have tried aceityl-l-carnatine but it offered no help. The curcumin is a supplement I have been taking for years. Lately I have combined it with ginger for my nausea. I feel it helps but not significantly. I do get the typical annual blood draws for labs and so far no concerns. Results are within normal limits. As for the aceityl-n- cysteine I do not take a supplement. I eat plenty of foods daily that contain it. I feel eating a well balanced diet does not require heavy supplementation. I mainly take fish oil, probiotics, and curcumin….no medications at all. I rely on exercise and healthy eating. I feel the more I practice tasks, the more my brain learns the new pathways to perform those tasks. This is neuroplasticity. By using neuroplasticity tasks eventually become easier. As with anything else it also takes patience so hang in there. Sounds like you are determined to get answers. Don’t give up. Wish you well. Toni