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DiscussionRecently Diagnosed with Small Fiber Neuropathy
Neuropathy | Last Active: Jun 13, 2021 | Replies (24)Comment receiving replies
Replies to "Hi @athenalee I am so sorry to hear of all health issues you are facing. With..."
Thank you Toni for your kind words. I’ve done extensive research on what conflicts with Tacrolimus…unfortunately many natural supplements I’d like to take. I’m not sure if the ALA is helping, doesn’t seem to hurt me, so I’ll give it a little longer.
I have very high levels of B12 for reasons not yet clear, so don’t take any Vitamin Bs other than biotin to counteract hair loss due to Tac. And, I have low platelets, probably an autoimmune thing, so I read that I shouldn’t take Acetyl-L-carnitine. Curcumin seems to have promise, but studies show it interacts with Tac. Have you tried it?
I do take fish oil, and I eat a lot of chia seeds, walnuts, and other things high in Omegas. I’d be curious if you tried N-Acetyl cysteine…I wasn’t impressed with what I’ve read about it.
Like you I’m a firm believer in eating well, walking, and exercise. Someone said walk backwards some, so I’m doing that and stair exercises for the balls of my feet, along with other foot exercises. John says keeping his feet moisturized helps him, so I started doing that every day. I’m hoping to get more answers with my upcoming doctors visits.
Take care and let me know if you discover anything helpful! Athena