← Return to Member Neuropathy Journey Stories: What's Yours?
DiscussionMember Neuropathy Journey Stories: What's Yours?
Neuropathy | Last Active: Oct 17 5:52am | Replies (571)Comment receiving replies
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Hello @jpb1055, I would like to add my welcome to Connect along with @forest2005 and other members. Thank you for sharing your neuropathy journey. I know it can be extremely difficult at times to deal with the symptoms. I've found in my own experience that you sometimes just have to take things one day at a time, one step at a time and smile at the world to create your own new normal.
@artscaping and other members have had success and some relief using Myofascial Release Therapy (MFR). There is another discussion where members have shared their experience and it might be helpful to see if it might be an option for you.
Myofascial Release Therapy (MFR) for treating compression and pain: https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
Have you tried any complementary or integrative therapies? There are some ideas listed on the Foundation for Peripheral Neuropathy website here: https://www.foundationforpn.org/living-well/integrative-therapies/
Hello and I hate to hear what you are dealing with. I have been battling Idiopathic Small Fiber since 2014. I was diagnosed at the Rochester Mayo Clinic. I will be 100% transparent with you. I have never missed a day of work but my unbelievable pain is a cross I just bare. Healthcare has declined and no one truly gives a crap about me and my horrible life. Every road is a dead end and there is no hope in sight. That is the unvarnished truth. I am just trying to stay sane. I have tried it all and nothing has helped me. Doctors act as if I am am pretending to be so miserable. Sometimes I wish they could experience what I feel 24-7 and maybe they would be more interested to help. I pray your journey is better than mine.