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Want to talk with others. Have you found relief from CRPS?
Chronic Pain | Last Active: Jan 25, 2025 | Replies (243)Comment receiving replies
Well I believe I have it. One doctor will say yes this is CRPS another one says no.And I stay stuck in pain. I had a TRK 3yrs ago, a revision 1yr ago and the pain just below my knee remains the same as the day after my 1st surgery. I have been unable to walk more than 25yds due to severe pain. I have had 13 procedures over the 3yrs trying to cut down pain , nothing was helped. But it's crazy that up to 10 different doctors can have different opinions , I guess they really are just PRACTICING MEDICINE. I will be trying some new nerve block shots on 6/18 and if these don't work I guess it will be a DRG implant ,which scary the hell out me
Replies to "Well I believe I have it. One doctor will say yes this is CRPS another one..."
I have tried the DRG and I’d say nothing to be scared about. It didn’t work for me but I have spoken to people who it worked wonders for. You have a trial of say 7 days before anything is implanted thus you can see if you get success. Actually I am currently trying the Stimwave implant and no luck as yet but again many people get success.
In my opinion it’s worth the trial.
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Sorry for all your pain. There is a Budapest Scale for criteria for CRPS. You can find it online. My understanding is this is the gold standard for determining if you have CRPS -CRPS is diagnosis of exclusion so if you have no other explanation for symptoms, CRPS is typically diagnosed based on scale.