Connect
← Return to Want to talk with others. Have you found relief from CRPS?
Discussion
Want to talk with others. Have you found relief from CRPS?
Chronic Pain | Last Active: Jul 10 6:30am | Replies (235)Comment receiving replies
Well I believe I have it. One doctor will say yes this is CRPS another one says no.And I stay stuck in pain. I had a TRK 3yrs ago, a revision 1yr ago and the pain just below my knee remains the same as the day after my 1st surgery. I have been unable to walk more than 25yds due to severe pain. I have had 13 procedures over the 3yrs trying to cut down pain , nothing was helped. But it's crazy that up to 10 different doctors can have different opinions , I guess they really are just PRACTICING MEDICINE. I will be trying some new nerve block shots on 6/18 and if these don't work I guess it will be a DRG implant ,which scary the hell out me
Replies to "Well I believe I have it. One doctor will say yes this is CRPS another one..."
I have tried the DRG and I’d say nothing to be scared about. It didn’t work for me but I have spoken to people who it worked wonders for. You have a trial of say 7 days before anything is implanted thus you can see if you get success. Actually I am currently trying the Stimwave implant and no luck as yet but again many people get success.
In my opinion it’s worth the trial.
Connect
Sorry for all your pain. There is a Budapest Scale for criteria for CRPS. You can find it online. My understanding is this is the gold standard for determining if you have CRPS -CRPS is diagnosis of exclusion so if you have no other explanation for symptoms, CRPS is typically diagnosed based on scale.